Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,219 members•40,230 posts

All posts for November 2017

Stress induced?

I just heard from a friend that she has a friend who's PMR was stress induced. That is new to me. Hopefully she will be checking the site out soon and can read...

I just heard from a friend that she has a friend who's PMR was stress induced. T...

CrazyTrucker

•7 years ago

5 Replies

How has being a member of HEALTH UNLOCKED PMRGCAuk COMMUNITY supported you?

I am sitting here this evening watching 'I'm a celebrity get me out here', marvelling at how quickly a group of strangers become reliant on one another and...

I am sitting here this evening watching 'I'm a celebrity get me out here', marve...

Marilyn1959

•7 years ago

18 Replies

Swollen ankles

I have very swollen ankles the skin is drawn tight, I have bad pain in my groin so my walking ability has been really bad confined at home for nearly a week...

I have very swollen ankles the skin is drawn tight, I have bad pain in my groin ...

Jamie345

•7 years ago

12 Replies

Want to take advantage of all our features? Just log in!

Thoughts on Pred and the underlying illness

Tapering is not a race to zero given that judging the right dose is a finely judged trial-and-error attempt to find the lowest dose that maintains the initial...

Tapering is not a race to zero given that judging the right dose is a finely jud...

Stravaman

•7 years ago

16 Replies

Adrenal crisis?

I do hope not boring you with again a post, but I feel a bit lost and scared Contacted the rheumy this morning, for the risk of adrenal crisis and she said “ O...

I do hope not boring you with again a post, but I feel a bit lost and scared Con...

Zofitmogelijk

•7 years ago

28 Replies

Intravenous bisphosphonates

I've looked through the archives and found a number of posts from members who decided against accepting intravenous bisphosphonates. In my case I took...

I've looked through the archives and found a number of posts from members who de...

Marijo1951

•7 years ago

27 Replies

Adrenal gland

I may be wrong.. (seldom right but never in doubt!) but is it right that after a few weeks on prednisone my adrenal glands won't be working? And if so...will I...

I may be wrong.. (seldom right but never in doubt!) but is it right that after a...

yogabonnie

•7 years ago

24 Replies

YOU ALL ARE SO BRAVE

You know what I love about this site? Everyone is so willing to help ASAP. You take your own personal experience as well as what is fact and give it...

You know what I love about this site? Everyone is so willing to help ASAP. You...

chiwawaa

•7 years ago

5 Replies

Actemra and PMR

Actemra has been a lifesaver for me and my GCA. It has enabled me to dose down the prednisone and still heal the GCA symptoms. However, as I dose down...

Actemra has been a lifesaver for me and my GCA. It has enabled me to dose down ...

Leeleep

•7 years ago

16 Replies

Just a little update

Hi all, thought I might write a good update rather than always coming on looking for advice 🤗 I started tapering from 10mg to 9mg (second try) last weekend....

Hi all, thought I might write a good update rather than always coming on looking...

Allsgrandso

•7 years ago

10 Replies

Prednisilone side effects

Hi, i am suffering from SLE since 4 years and i am taking prednisone. I want to know, Is that ok to taking prednisilone tablets at night. And is there any...

Hi, i am suffering from SLE since 4 years and i am taking prednisone. I want to ...

Ayomi

•7 years ago

12 Replies

Survival

Well managed with a hectic weekend. Legs working, thank God. Enjoyed every minute of birthdays etc., Had a great walk with my dog this morning. Sunny but cold....

Well managed with a hectic weekend. Legs working, thank God. Enjoyed every minut...

morrison

•7 years ago

6 Replies

Worth a Second Opinion

After a sight scare in June had an emergency eye test with long standing opticians Specsavers. Results fine with little change from previous year. Three months...

After a sight scare in June had an emergency eye test with long standing opticia...

Marilyn1959

•7 years ago

27 Replies

Pmr/vit d deficiency

Hi I'm new ... I was diagnosed with pmr 21 years ago when I was 51...took two months to get diagnosed as they said I was too young..five weeks ago was informed...

Hi I'm new ... I was diagnosed with pmr 21 years ago when I was 51...took two mo...

Nann45

•7 years ago

11 Replies

All I want for Christmas is.....

Well it has finally happened! My front teeth are out! Well one of them is and the other is looking very sorry for itself! I have had oral surgery to remove a...

Well it has finally happened! My front teeth are out! Well one of them is and th...

JulieR2

•7 years ago

9 Replies

When to begin taper

Markers were normal on labs. Told to begin taper (have been on 40 mg for 5 weeks but no relief . Legs and feet numb and stiff, vision really bad, brain fog,...

Markers were normal on labs. Told to begin taper (have been on 40 mg for 5 week...

Grammajoy

•7 years ago

7 Replies

Hi from the new girl in town!

Hi there everyone! Gee, I wish I had known about you when I was first diagnosed with PMR. I had undergone a gastric sleeve operation in September 2011 to both...

Hi there everyone! Gee, I wish I had known about you when I was first diagnosed ...

HeatherHoney

•7 years ago

7 Replies

Quick reduction .

My gp started me on 10mgs prednisolone beginning of November and within 3 days the pain had gone and day by day I felt stronger - saw him again two weeks...

My gp started me on 10mgs prednisolone beginning of November and within 3 days...

Auldcoo

•7 years ago

5 Replies

What is happening now?

Good morning all, your advice please. There is a new phenomene and I can’ t find anything in the books or the fora. Is anyone familiar with being soooo cold...

Good morning all, your advice please. There is a new phenomene and I can’ t find...

Zofitmogelijk

•7 years ago

32 Replies

Advice from members with GCA re symptoms while tapering

I have been looking out onto our back garden and the next door field, it is one of those glorious clear, crisp and icy mornings that remind me of being young...

I have been looking out onto our back garden and the next door field, it is one ...

Judyliz

•7 years ago

19 Replies

Tracking, focusing issues

I have had PMR for almost 4 years. Down to 4m with the help of Actemra. First time ever I had a problem focusing or tracking the reading of a phone number....

I have had PMR for almost 4 years. Down to 4m with the help of Actemra. First ti...

Klah

•7 years ago

4 Replies

PMR and Giant Cell Arteritis

Hi there I’m 54 soon to be 55 and just had a very quick diagnosis still getting my head round this and in a wee bit of shock thought it was the menopause. My...

Hi there I’m 54 soon to be 55 and just had a very quick diagnosis still getting...

Hidden

•7 years ago

12 Replies

Epidural injection for non-related PMR issue while on Pred for PMR.

Has anyone had to have an epidural injection for hip pain not related to PMR? I finally gave in and had one. My PMR seems to be in control with 3 mg per day...

Has anyone had to have an epidural injection for hip pain not related to PMR? I...

Robinre

•7 years ago

3 Replies

Three year battle and counting

Had no idea what was happening to me when I could not bend down a pick up a tool off of the floor. Next morning had a headache and felt sore all over ( like I...

Had no idea what was happening to me when I could not bend down a pick up a tool...

Scarter

•7 years ago

15 Replies

Newly diagnosed

Hello I am 55 yrs old and was diagnosed with PMR 3 weeks ago by a rheumatologist after suffering weeks of pain. I was put on 30mg of prednisoline a day and as...

Hello I am 55 yrs old and was diagnosed with PMR 3 weeks ago by a rheumatologist...

Jennyhampshire

•7 years ago

27 Replies

To taper or not?

I have tapered from 15mg to 9mg but could not get down to 8mg, so back to 9mg for the last month. Visited my GP yesterday and he says to stay at 9mg until...

I have tapered from 15mg to 9mg but could not get down to 8mg, so back to 9mg fo...

kathleen18

•7 years ago

18 Replies

Relaxation

Hi. I have been a yoga instructor for 40 years..and thought if any of you would like to have relaxation and gentle yoga exercises I would share the tracks I...

Hi. I have been a yoga instructor for 40 years..and thought if any of you would ...

yogabonnie

•7 years ago

7 Replies

Does this sound like I've hit the wall?

I've been on 8.5 for almost two weeks now. I take 8.0 DR at ten pm, and .5 IR breakfast. At 9.0 I was generally asymptomatic except for what I refer to as the...

I've been on 8.5 for almost two weeks now. I take 8.0 DR at ten pm, and .5 IR b...

Hindags

•7 years ago

18 Replies

Question

How do you post a photo on here of yourself. I just think it is so nice to see who you are talking to. Help. PMR PRO. I would love to see a person behind the...

How do you post a photo on here of yourself. I just think it is so nice to see w...

morrison

•7 years ago

48 Replies

Gratitude

Thank you all so much for your support and encouragement. My legs are mine again, so much so I can look after my 4 year old grandson tomorrow and do a...

Thank you all so much for your support and encouragement. My legs are mine agai...

morrison

•7 years ago

6 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2017

Stress induced?

How has being a member of HEALTH UNLOCKED PMRGCAuk COMMUNITY supported you?

Swollen ankles

Thoughts on Pred and the underlying illness

Adrenal crisis?

Intravenous bisphosphonates

Adrenal gland

YOU ALL ARE SO BRAVE

Actemra and PMR

Just a little update

Prednisilone side effects

Survival

Worth a Second Opinion

Pmr/vit d deficiency

All I want for Christmas is.....

When to begin taper

Hi from the new girl in town!

Quick reduction .

What is happening now?

Advice from members with GCA re symptoms while tapering

Tracking, focusing issues

PMR and Giant Cell Arteritis

Epidural injection for non-related PMR issue while on Pred for PMR.

Three year battle and counting

Newly diagnosed

To taper or not?

Relaxation

Does this sound like I've hit the wall?

Question

Gratitude

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