Again ... (3rd post of the day)
I spoke too soon when I posted "New Doctor Tomorrow" earlier today. A couple hours later and my shoulder and neck were stiff and hurting. I had already taken my 30 mg dose so I took 10 more, rested for a couple of hours and still had stiffness and pain however not as bad. So I took an Epsom salts bath and that didn't ease it either. I took 5 more and relief, finally. Even this many hours later I am still not hurting.
I didn't mention my tailbone/buttocks pain earlier but it was really bothering me too. It did not go completely away with the pred though. I fractured my tailbone when I was about 12 years old and now it is enlarged so I sit on a special pillow. In a post I read earlier someone mentioned simply taking ibuprofen. I have been taking 800 mg of it for a long time but not since I have been taking prednisone. I took one of those today and the pain in my tailbone area went (almost) away too.
The more I read and learn I am seeing how very complex all of this is. I was diagnosed with fibro nearly 30 years ago but I never really believed that is what I had. At that time it really was an "I don't quite know what this is" diagnosis. Things are much different now from what I understand but I have never had a recheck for fibro.
I am also becoming more convinced of the PMR diagnosis because in the past 3-4 years I have had what I called a stiff neck multiple times. Sleeping has been so hard with one or the other of my shoulders hurting. I have also had shots in both thumbs, my right hip, and my left shoulder area. A couple of those were steroid but others were like lidocaine or something. However, all of the shots worked to relieve my symptoms. Also, over this past 2 years walking had become awful really. I identify so much with people on here when they talk about going down stairs, etc. I couldn't even step off of a curb very well. I had to nearly stop then step and step. I was feeling 90. And for the past 15'ish years, I have been saying: How will I ever reach 90, like my parents did, feeling the way I do. I couldn't even imagine.
For the past year, I really have become nearly housebound, not wanting to do anything at all. Looking at all of this in retrospect I see I have been in a really bad way. My quality of life has been nil.
I want to thank you all sincerely for what you do in this group. I feel as if someone has opened the windows and the fogginess is clearing. I am feeling hopeful about my health for the first time in, well, a loooong time!