You were very helpful last week when I wrote about the effects of reducing from 25mg to 20mg. I decided to go back to 25mg which led to a big reduction in pain. Then late on Friday I started to get a lot of GCA type pain all around my skull and temples, something I hadn't experienced since starting steroids. I let it go til Sunday, then rang 111 who said, in view of the remote risk of blindness, I should go to A&E. I did so, saw one of the Royal Free's wonderful young doctors who rang an ophthalmologist for advice and gave me a battery of eye tests, which were very reassuring. The doctor also got advice from a consultant rheumy who said to up the steroids to 40mg immediately. I went back Monday morning when they confirmed I must stay on 40mg for 3 months and they're bringing forward my 11th December rheumy appointment.
One thing that worries me is that I was told that my recent DEXA scan shows that I have osteoporosis, so the doctor on Monday was very insistent that I must take Alendronic Acid, probably for 5 years. I was prescribed this on 31st July when I was first diagnosed and I did take it for a month. However I was dubious and all I've read since really puts me off. I didn't renew the first prescription. I have now reluctantly agreed to start it again but really have doubts. I have problems from time to time with food getting stuck in my oesophagus, but have never been to a doctor about it as it didn't seem too bad. I've made an appointment with my GP for Thursday next week so I can ask him for advice to weigh up the relative risks, but I'd welcome any helpful contributions from all of you. I know at heart I'm just a coward - can't bear the thought of a barium swallow or an endoscopy - but I also know this is ridiculous.