I have had PMR for 9 years. Am now approaching 77 years. I have done all I can to defeat this disease. So much for medics saying it will go away after 2 years! It's been one relapse after the other. It took me 8 months to taper from 3 mg to 1 mg, then I relapsed. Back onto 10 mg and quick taper to 5 mg, because my blood sugar and cholesterol are high, so is my blood pressure. Before Prednisolone I had low blood pressure and normal bloods. Now down to 3.5 mg and for the last 10 days I have been feeling quite ill, weak, exhausted. It feels like flu. The older I get the longer it takes me to recover. Apart from PMR and Pred I have no other diseases or ailments. But a close friend who has seen me throughout this horrible condition told me last week that she thinks I am going gradually downhill. I know it, it feels like it too. I know I am getting older, but others my age are out playing golf, travelling. Were it not for PMR I would be out with the Ramblers, gardening, going on holidays. But I have been too exhausted to travel over the past 2 years. By the way, my bones are strong, no oseopenia or osteoporosis and I refuse to take bisphosphonates. I feel sorry for my husband because our retirement is blighted by my condition. If anyone else has had this disease for such a long time I would welcome your input on how you handle it.