ON-GOING RESEARCH: We need to help ourselves to ... - PMRGCAuk

PMRGCAuk

20,470 members38,423 posts

ON-GOING RESEARCH: We need to help ourselves to help others.

jinasc profile image
0 Replies

On another thread PMRpro posted an interesting link. It made me think and below is the result.

Both of these surveys are continous and both active and used by researchers so you know what to do neither of them are complicated or take up too much of your time.

International Survey started August 2008. PMR, GCA or both.

Sufferer Elliott Greene from USA, devised an international online survey for suffers of PMR and GCA. Elliott is an ex immunologist and co-owns a software company specialising in online surveys. We, in the UK helped him devise this survey and also called on the expertise of medical people to see what they wanted added.

The survey is totally anonymous and the information accrued can be viewed free of charge to anybody. We hope this survey will aid future research projects.

Please take approximately 10 mins to complete the survey.

To complete the survey, please click this link: quantisurve.com/cgi-bin/pmr...

To see the survey report please click this link: quantisurve.com/pmr/reports...

GCA Survey

For sufferers of GCA there is also a survey at the Marijke Stichting Foundation Netherlands. Please click this link: marijke-foundation.eu/Websi...

This survey relates specifically to GCA.

Written by
jinasc profile image
jinasc
To view profiles and participate in discussions please or .

You may also like...

RESEARCH PROJECT: 'Your Ears' - WE NEED YOUR HELP.

respond. We are conducting a survey of PMR and GCA patients for a research project in relation to...

I'm busy doing nothing - could PMR/GCA be telling us we need to let ourselves do less?

This is a link to an article in the Guardian https://www.theguardian.com/lifeandstyle/article/2024

PMR Voices Survey. Please participate if you have the time and inclination.

member of a PMR group or know others who are living with PMR, please do share the survey amongst...

Research into GCA and its effects on patients: The EULAR/ACR Response Criteria for GCA

published is likely to influence both research and treatment of GCA in Europe and the States in...

Can you help? Research into GCA

complete their survey - for more information and links to the online surevery, please visit the...