Not pmr

[Mark7162]

Hello everyone. Thanks for answering my questions. You guys were right. It's not pmr. I have multiple myloma. Blood cancer. Now in Boston working with oncology. Would love to find a support group like this for multiple myloma. Good luck to you all.

[DorsetLady PMRGCAuk volunteer]

Hi Mark,

Sorry to hear of your diagnosis, but now you have one at least you can get treated correctly and successfully.

Sure you will find another support group - just browse through communities, if you tap on My Communites button you will find an alphabetical list.

Good luck.

[bowler]

Sorry to hear you have myloma, there is a sight called " Myloma Beacon "

good luck

[Hidden]

Dear Mark so sorry to hear your diagnosis. I have no clue as to any support groups just wanted to let you know you are in my prayers.

Good luck and quick remission.

Linda

[Patience47]

Mark, you are in my thoughts and prayers.

[lesley2015]

Hi Mark,

So sorry to hear your diagnosis, but at least you can the the correct treatment.

Keeping you in my thoughts.

Best wishes

Lesley

[Maisie1958]

Hello Mark,

I am very sorry to hear of this diagnosis.

Wishing you a speedy remission,

All the best,

Irene

[PMRpro Ambassador]

Sorry to hear your diagnosis Mark - but having the right diagnosis is the first step to sorting it out. All the very best.

[Akino]

Very sorry to hear your diagnosis Mark. I hope you'll find a good group and I wish you'll have the best treatment in Boston.

Wish you all the best.

[cjatthesea]

Mark, so sorry to hear of your diagnosis. Another nasty disease. I have GCA and PMR...as well as a few other issues. Sjogrens and Fibro. Then there are always the problems that arrive after the meds start.

My husband's brother has fought Multiple Myeloma for about 9+ years. He has great medical care in the Cincinnatti area. ( We live in the states) . Seems each time his numbers start going in a direction the doctors don't like...they put him on something new. Recently that happened....was doing poorly for a short time...weeks. Put him on something new and is now back to working out daily and getting ready to play golf.

We, also, have a neighbor who was diagnosed two or three years ago. Her care is from Arkansas. She is also receiving a type of chemo our brother in law is now using. I don't know the details but it goes in for a very direct hit....less damage to normal cells. She is in remission. She's a beautiful, 78 year old woman who is still selling real estate.

It isn't easy but can be handled. Need to find aggressive doctors and push for the latest treatments.

Will be praying for you and your doctors,

CJ

[Cinka]

All the very best, Mark, for a successful treatment. Thinking of you with love and prayers and hope you find a supportive group. Don't forget that we are all still here for you, Mark. God bless. xx 💜

[JJackdaw]

Hi mark, sorry to hear of your diagnosis and wish you all the best. Even if you find the site you needed to talk to other sufferers with same condition still pop back in here for a chat to us.

[KCRoyals]

Sorry to hear. The C word is really scary but rapid strides are being made.

NHS link might be of help:-

nhs.uk/Conditions/Multiple-...

[Judigardener]

Hi Mark. Could you be the one to start up a group?

[galp]

Dear Mark

That must of been so difficult to hear and I am sure you are stiil absorbing the diagnosis.

be kind to yourself,give yourself time to gather your resolve .I am sure each day will have a new emotion.

I find that some forums are very negative, and therefore can be very scary

places. Finding this site and "Patient" was such an unexpected gift,

Its spirit ,though honest, is one of strength and support.

I hope you find one with that same spirit. And I wish you well

on this journey to wellness .

Gina

[Patience_1]

Hello Mark, I'm very sorry to hear your news, you must be reeling. At least now things can be properly focused, and I wish you all the best for your treatment.

[Celtic PMRGCAuk volunteer]

So sorry to hear your news, Mark, but at least having a definitive diagnosis means that you can get started on treatment and I wish you all the success in the world with that.

With regard to your query about a Myloma Support Group, there is one in the UK on the following link which might help - good luck:

myeloma.org.uk/how-we-can-h...

[Jackoh]

So sorry to hear your news Mark which must have been quite a shock, but now thankfully you have a definite diagnosis. At least you now know what direction you are heading in and can start to inform yourself re this condition, when you feel able. All the very best wishes and prayers for your future treatment. Remember to try to take one day at a time. X Jackie

[SusanEleven]

There are truly gifted medical pros in Boston. Sending all good thoughts your way from north of Boston for successful treatment and remission.

[30048]

My prayets are on the way. Goid luck to you !!