A quick question about GCA that probably doesn't have a short or easy answer.
When are niggles a sign of a possible flare or the Pred not being high enough?
To my mind, if one has had inflamed tissues, the cells aren't going to change back to normal overnight, so abnormal temple sensations might occur. I go on, if it doesn't last more than hour, gets worse or come back within a few hours it's probably ok....??
I asked the Rheum Reg ( don't think I get to see a consultant) if one should expect to be symptom free throughout or whether people get sensations and niggles. He said most don't but some do. I also asked when I should take a higher dose should symptoms occur. The message I got was that if I was getting bad pain and eyesight problems I should give them a ring. That's laughable because getting hold of anybody quickly is practically impossible. Don't worry, if that happened I would pop some pills and go to A&E, but I'd have thought that there is a middle ground before one gets to that point.