I recently experienced a flare after reducing pred on holiday. Went downhill nine days later. Increased again and saw the rheumy nurse. She suggested I stay on 30 for now. She run this by the doctor and he emailed me to say he felt my problem was unlikely to be caused by GCA. Here we go again. He wanted me to reduce by 2.5 every two weeks until I got to 20mgs. Despite having constant temporal pain which was really getting on top of me I listened to him. Went down to 27.5. Constant pain, fatigue, painful scalp, looked awful and felt quite low. Woke up yesterday and decided no more. It's my health and my eyesight. I decided to experiment and hit this hard to see what would happen. I increased to 40 which was my starting dose when I first became ill in November 2016. By the evening the pain was settling down. I woke this morning almost pain free. I feel better. I certainly look better. I was frightening myself when I looked in the mirror, I looked so rough. I will go to see the GP tomorrow and tell him what I did. This improvement has come so quickly after being in pain for weeks. Has anyone else had to increase so high to get over a flare?
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.