Dear All-I've got GCA-I saw a Dermatologist on Friday afternoon because of problems with my ankles skin following blistering on my left ankle. The blisters went away but not before they'd been seen by my GP. Now I just have open sores that weep a clear liquid and eventually crust and scab, and when the scabs go leaves a red area behind. It has been suggested that I may have Bullous Pemphigoid and I am to have a blood test to confirm. Does anyone have Bullous Pemphigoid and what was the blood test called to check it out. It is helpful that the treatment is steroids which I'm already taking for my GCA and I'm now on quite a low dose of 4.5mgs. As it takes 5-6 years for the BP to go away it is likely that my dose may be increased initially to get the BP under control, so I don't think that I will be getting down to "0" anytime soon as my Rheumatologist would like. He's done a fantastic job getting me down from 15mgs a day to 4.5mgs so I wait for the Tuesday CRP blood test with great interest. Last month it was 9. Sorry to go on and on but I'd never heard of BP just like I'd never heard of GCA and I've survived 3-years 5-months of that, so if anyone can help I would be very grateful.
Hope you are all keeping well. Oh you have probably guessed that's me picking blackberries in one of the forests of Suffolk, I think it's Chillesford taken by my darling wife Janet.