Hi Everyone, A quick up date first, came onto this site a few months ago in desperation as my Rheumie took me off steroids even though I was still in considerable pain. Through this wonderful site and all the feedback I received from some of you I went back on 5mg. This has been working well so have now got down to 3mg, cannot seem to get any lower than this. My problem is my night time nightmare, it only happens about once a week but when it does I just want to scream. I awake about 3am, feeling absolutely dreadful, a blinding headache (not temples) body aches all over, so much so I cannot get out of bed without help from my partner, a racing heart and dizziness. My partner gets me into a chair where I feel more comfortable, I have two rich tea biscuits and I have my 3mg of pred. It takes about 2 hours for my body to calm down and by mid-day I feel fine. Can anyone tell me what the heck is going on ? This is driving me crazy. HELP ! Thanks in anticipation, Maz.
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