Hi everyone. I have just joined this supportive group. ☺. I'm 54 and have a diagnosis of Systemic Sclerosis (scleroderma) and also ulcerative colitis. All part of the lovely auto immune group of conditions...
However, recently I have been getting burning type head and neck aches, mostly starting at the back of my head and working upwards. Usually starts around 3am -4am. Paracetamol doesn't seem to help. The headache can last for hours, then eventually eases. I can also see that the blood vessels on my temples- particularly left side - are prominent. My bloods aren't particularly raised, but my BP seems higher than it usually is.
Does this sound like GCA?? My mum had PMR...
I have a docs appointment soon but just looking for thoughts from people with experience.
Thanks in advance!
Jen
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JenniferClaireA
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It could be - but then again, it mightn't be! Many symptoms of GCA can overlap with systemic scleroderma symptoms - including headache and the symptoms of trigeminal neuralgia which is a differential dx for GCA. I think it really is something to bring to the attention of your rheumy asap - and if they get worse or you get any visual symptoms at all, make it an emergency call rather than waiting for your appointment.
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