Request for information please!

Hi everyone. I have just joined this supportive group. ☺. I'm 54 and have a diagnosis of Systemic Sclerosis (scleroderma) and also ulcerative colitis. All part of the lovely auto immune group of conditions...

However, recently I have been getting burning type head and neck aches, mostly starting at the back of my head and working upwards. Usually starts around 3am -4am. Paracetamol doesn't seem to help. The headache can last for hours, then eventually eases. I can also see that the blood vessels on my temples- particularly left side - are prominent. My bloods aren't particularly raised, but my BP seems higher than it usually is.

Does this sound like GCA?? My mum had PMR...

I have a docs appointment soon but just looking for thoughts from people with experience.

Thanks in advance!


2 Replies

  • It could be - but then again, it mightn't be! Many symptoms of GCA can overlap with systemic scleroderma symptoms - including headache and the symptoms of trigeminal neuralgia which is a differential dx for GCA. I think it really is something to bring to the attention of your rheumy asap - and if they get worse or you get any visual symptoms at all, make it an emergency call rather than waiting for your appointment.

  • Thanks so much for your advice. I had also thought about trigeminal neuralgia...

    Ahh these conditions are so confusing at times, and often overlap!

    Will see how it goes and seeing rheumatologist team soon too.

    Best wishes

    Jen x

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