Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for February 2017

PRED and C. Difficile.........

Hello all you lovely people. Last Friday, 3 Feb, I was rushed to hospital for uncontrollable vomiting and diarrhoea. At midnight, in A &E, a nurse said Happy...

Hello all you lovely people. Last Friday, 3 Feb, I was rushed to hospital for un...

karools16

•7 years ago

13 Replies

Thanks a Million Folks !

Just want to say a big thanks to all of you who replied to my first post. You helped me no end with your comments and sound advice. Trying to get by on...

Just want to say a big thanks to all of you who replied to my first post. You he...

mzz70-70

•7 years ago

10 Replies

Positive Dr appt

Hi all Well I have had a check up with Dr. re bloods, as bit high. But the blood test was done shortly after a reduction in preds. So after speaking with Dr...

Hi all Well I have had a check up with Dr. re bloods, as bit high. But the blo...

9lives

•7 years ago

6 Replies

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At Last I have an appointment with Rheumy, But what do I need to take i.e History of Symptoms/Side effects,

Hi all At last after 10 months suspected GCA, I have an appointment with a Dr Byrne next friday a Rheumy at Colchester Hospital. What I need to know is what I...

Hi all At last after 10 months suspected GCA, I have an appointment with a Dr By...

zarzis

•7 years ago

17 Replies

New Prednisolone

I have been prescribed the 5mg coated preds having been on the uncoated ones for nearly 2 years. I believe that I can now stop taking omeprazole...advice...

I have been prescribed the 5mg coated preds having been on the uncoated ones for...

tgca

•7 years ago

11 Replies

Chicken pox risk?

Hello, I'm new here, and very recently diagnosed with PMR after some challenging months with other medical problems, beginning with what I Thought was...

Hello, I'm new here, and very recently diagnosed with PMR after some challengin...

Zebedee44

•7 years ago

11 Replies

PMR for 2.5 years tapering

Hi, I'm 70 and have pmr for two and 1/2 years. I started with 20 mg of pred and tapered too fast (i guess) down to 3 mg, when I relapsed after 1.25 years. My...

Hi, I'm 70 and have pmr for two and 1/2 years. I started with 20 mg of pred and...

jes46

•7 years ago

16 Replies

Brewing GCA relapse?

I was diagnosed with GCA in June 2015 with a positive biopsy. Last month I had an ESR raised almost as high as the when originally diagnosed. On that basis my...

I was diagnosed with GCA in June 2015 with a positive biopsy. Last month I had a...

granny-b

•7 years ago

16 Replies

So it may be PMR as well!!!!

Went to Rheumatology clinic on Monday, still not feeling great and still on 9.5mg pred. Gave my nurse a list of how I'd been feeling since Christmas...tired,...

Went to Rheumatology clinic on Monday, still not feeling great and still on 9.5m...

altywhite

•7 years ago

13 Replies

Return to 10.5 or stay at 11.5

I believe I posted in the wrong place. Mrs PMRpro and piglet can you please go back nine days ago to my rising CRP and ESR and cold and root canal. That is...

I believe I posted in the wrong place. Mrs PMRpro and piglet can you please go ...

Nap1

•7 years ago

3 Replies

Goldilocks

Hello I was diagnosed with pmr 18 months ago and was managing symptoms well. Even came off steroids a week before Christmas as GP said it would be possible was...

Hello I was diagnosed with pmr 18 months ago and was managing symptoms well. Eve...

LazyTiger

•7 years ago

7 Replies

Our questions and the doctor's dilemma

https://www.theguardian.com/commentisfree/2017/feb/09/three-questions-that-every-patient-should-ask-their-doctor...

https://www.theguardian.com/commentisfree/2017/feb/09/three-questions-that-every...

PMRpro

Ambassador•7 years ago

14 Replies

Can you increase prednisone dose too fast?

Hi All, I am one of those patients who reduced my pred too quickly on advice of Rheumy. Started at 20mg, after two weeks down to 17.5 and felt ok. After two...

Hi All, I am one of those patients who reduced my pred too quickly on advice of ...

SueQ1944

•7 years ago

3 Replies

Good Doctor visit

Was at doctor yesterday and blood is looking good, sed rate down, white count up, inflammation down. Currently at 14Mg of prednisone from 20 looking to reduce...

Was at doctor yesterday and blood is looking good, sed rate down, white count up...

jevuki

•7 years ago

8 Replies

Feeling positive after Rheumy appointment........I think!

First diagnosed March 2016 started on 20mg. Reduced too quickly to 11/12mg by July - lack of advice and guidelines at the time. Thank goodness I found this...

First diagnosed March 2016 started on 20mg. Reduced too quickly to 11/12mg by Ju...

Lochy

•7 years ago

7 Replies

First Rheumatologist Appt

Sept of 2016 I went to a orthopedic surgeon thinking I would need surgery on my left shoulder MRIs were done X-rays were done only to find nothing when tests...

Sept of 2016 I went to a orthopedic surgeon thinking I would need surgery on my ...

nancyannehanson

•7 years ago

4 Replies

Reducing Prednisolone

Hi I am new on here and have been reading lots of posts on reducing predictions. I don't know if I am lucky or not!!!! I was diagnosed with PMR Feb 2014 could...

Hi I am new on here and have been reading lots of posts on reducing predictions....

Hidden

•7 years ago

10 Replies

Coming off Prednisolone

Hi, I'm Mazz and this is my first post. I have suffered PMR for 2 years, started on 15mg of Pred, gradually reducing it and now my rheumatologist says my ECR...

Hi, I'm Mazz and this is my first post. I have suffered PMR for 2 years, started...

mzz70-70

•7 years ago

95 Replies

Planned trip next week - so anxious!

We are going from Maine USA to Las Vegas on Tuesday for 5 days. We planned this trip over a year ago, before the diagnosis... and, I ❤️LOVE ❤️ traveling... but...

We are going from Maine USA to Las Vegas on Tuesday for 5 days. We planned this ...

Zacsmimi

•7 years ago

10 Replies

PMR and blood problems

Disappointing appointment. 😩 I like my Rheumy but he said he is super busy and has to go to a meeting a half hours drive away and he is stressed. So, not as...

Disappointing appointment. 😩 I like my Rheumy but he said he is super busy and ...

Janll

•7 years ago

4 Replies

Latest rheumie visit left me a bit confused

I have had PMR since Jan 2016. I've been down between 6-8 mg prednilosone for about 6 mos. pain keeps returning, etc. Fatigue is the worst of it for me, has...

I have had PMR since Jan 2016. I've been down between 6-8 mg prednilosone for ab...

Zacsmimi

•7 years ago

13 Replies

Skin round eyes going blue/black

On Saturday when I got up noticed what looked like brusing on inside corner of right eyelid,this morning worse and now on left eye lid . Starting to look like...

On Saturday when I got up noticed what looked like brusing on inside corner of ...

olive2709

•7 years ago

11 Replies

Plodding on

Had my first rheumatologist appointment a few weeks ago. Was given a steroid injection for the myofacial pain in neck and back of head which has really helped...

Had my first rheumatologist appointment a few weeks ago. Was given a steroid inj...

Hidden

•7 years ago

5 Replies

PMR and Ra

I wonder if anyone else has been diagnosed as having "polymyalgic onset rheumatoid arthritis?" That is my ? Diagnosis. I have quite severe osteoarthritis in my...

I wonder if anyone else has been diagnosed as having "polymyalgic onset rheumato...

polymy

•7 years ago

22 Replies

Sorting it all out

Just celebrated my one year PMR anniversary. I find myself continually trying to sort my health concerns. In one year I have seen 4 Drs and 2 physical...

Just celebrated my one year PMR anniversary. I find myself continually trying t...

bunnymom

•7 years ago

15 Replies

DXA scan

Having had PMR for 4.5 years and having taken Pred in lowering doses, (together with Alendronic Acid once per week and ADCAL twice a day since that time), I...

Having had PMR for 4.5 years and having taken Pred in lowering doses, (together ...

greenheath

•7 years ago

4 Replies

neck pain polymyalgia

Hi, I'm on 5mg pred, been on high doses reducing over 5 years! Does anyone on here get severe pain in neck radiating up the back of the head? Have you any tips...

Hi, I'm on 5mg pred, been on high doses reducing over 5 years! Does anyone on he...

heli13

•7 years ago

19 Replies

Please help 😣

Hello everyone It's been a while since I was here as after being diagnosed with PMR. I was then later told by the rheumatologist that I didn't have that. As...

Hello everyone It's been a while since I was here as after being diagnosed with...

wooh66

•7 years ago

25 Replies

On a high

Hi. I am on a high today as my ESR rate which was 36 when diagnosed Sept 2016. Was still 36 Dec 2016 has come back as 7 today. I know I will have to be careful...

Hi. I am on a high today as my ESR rate which was 36 when diagnosed Sept 2016. W...

Chrissy1953

•7 years ago

7 Replies

Flying!

Hi all you amazing people who respond to the likes of me and my issues. One thing that's keeping me sane is I keep a diary / log. I colour code morning, day,...

Hi all you amazing people who respond to the likes of me and my issues. One thin...

Jude62

•7 years ago

8 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2017

PRED and C. Difficile.........

Thanks a Million Folks !

Positive Dr appt

At Last I have an appointment with Rheumy, But what do I need to take i.e History of Symptoms/Side effects,

New Prednisolone

Chicken pox risk?

PMR for 2.5 years tapering

Brewing GCA relapse?

So it may be PMR as well!!!!

Return to 10.5 or stay at 11.5

Goldilocks

Our questions and the doctor's dilemma

Can you increase prednisone dose too fast?

Good Doctor visit

Feeling positive after Rheumy appointment........I think!

First Rheumatologist Appt

Reducing Prednisolone

Coming off Prednisolone

Planned trip next week - so anxious!

PMR and blood problems

Latest rheumie visit left me a bit confused

Skin round eyes going blue/black

Plodding on

PMR and Ra

Sorting it all out

DXA scan

neck pain polymyalgia

Please help 😣

On a high

Flying!

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