I was diagnosed with pmr 18 months ago and was managing symptoms well. Even came off steroids a week before Christmas as GP said it would be possible was down to 1 mg. Was well for 3-4 weeks. Fantastic.
However 3 weeks, ago like Arnie, it was back. Phoned GP who suggested 5mg pred a day. I am actually on 6 and mostly feel ok, but....
I can't seem to control my temperature. I swing from boiling hot and sweaty to freezing (hat, scarf,duvet and blanket and still cold in a centrally heated house). Have a constant dull sickly headache and find sleep very hard to come by. Never seen a consultant but moved to a new area last September and thus a new gp. BP is knocking about at 140/90 so now borderline hypertensive. Think it's the pred doing that. Last thyroid bloods were ok. However feel lousy. Taking Aloe Vera daily in the morning - yuk, but ok with orange juice. Seems to help a bit I think, but the effect doesn't last all day. Any ideas? Thanks.