Went to Rheumatology clinic on Monday, still not feeling great and still on 9.5mg pred. Gave my nurse a list of how I'd been feeling since Christmas...tired, sore, achey, reflux, dental work etc!!! She was a bit concerned that I'd stopped the AA but agreed to let me stay off it. My last DXA scan was July 2015, after I'd been on high dose pred since the February, and it was normal. She was wondering whether to increase my pred again or give me a kenalog injection (which do seem to help me...I've had 3 previously).
So off she went to get the consultant...not mine..she wasn't there. This one was soo rude and abrupt..first comment was that I was on a strange dose of pred and that I didn't look like I'd put weight on with it!! I was fuming..he doesn't know me..how dare he assume!! I HAVE put weight on although I have lost a little but I am still over a stone heavier than I was!! I didn't even trouble to explain about my slow pred reduction.
He mentioned polymyalgia in passing but didn't bother to explain anything to me. In the end he said I should stay on 10mg pred for 12 months and then they'll see me again. Didn't even say goodbye when he left!!!
My nurse was a bit embarrassed I think and asked if I thought that was OK. But then..bless her...she thinks I should have an actual appointment to see my own consultant , so I go back in 3 months. I'll try and stay on the 10mg but if I feel worse or better I'll call the helpline and let them know.
Sorry for this.....he annoyed me so much..and I wasn't feeling great that day...so I wanted to get it off my chest and I know no one here minds that!! Thank you all.