PMR and blood problems: Disappointing appointment... - PMRGCAuk

PMRGCAuk

20,342 members • 38,113 posts

PMR and blood problems

Janll profile image
Janll
•4 Replies

Disappointing appointment. 😩 I like my Rheumy but he said he is super busy and has to go to a meeting a half hours drive away and he is stressed. So, not as relaxed a meeting as I had hoped. He did say my crp was good but my hemeoglobin was getting progressively low and he wanted me to be referred to a specialist. He is more than happy that I play around with my pred dosage as I feel comfortable with. So PMR and blood playing up too. Sure explains why I feel like I've got weights in my shoes. Out of breath.

Anyone else have blood problems as well as PMR?

Janll

Written by
Janll profile image
Janll
To view profiles and participate in discussions please or .
4 Replies
•
Sallyaches profile image
Sallyaches

I have had a low haemoglobin for over 2 years despite taking iron. My haemoglobin is in the region of 10. My rheumatologist says it is the anaemia of chronic ill health. The first investigations are usually more sophisticated blood test that look at things like your total iron stores and platelet levels. You will probably also be checked for bleeding in your stomach and bowel.

I do think the fatigue with anemia and the PMR fatigue combined can be difficult to cope with.

Janll profile image
Janll in reply to Sallyaches

Evidently, my iron levels are fine .... its other things that aren't. Platelets? It's all foreign to me. I was told it needs further investigation and I can't help with diet. When you get hit with fatigue from two different sides it does make life difficult. PMR is not a death sentence and I should be grateful for that. I suppose!

PMRpro profile image
PMRproAmbassador in reply to Janll

Platelets are the tiny while blood cells that make your blood clot properly:

urmc.rochester.edu/encyclop...

Are yours high or low?

jevuki profile image
jevuki

Yes I have cooleys anemia a mediteranean blood condition which plays very well with PMR so my blood is up and down constantly. I get blood work every month and have copies in a ledger so I can track myself. It wreaks havoc on life some days exhausted other days ok I just never know. I do take a host of vitamins to try and help the immune system. Best wishes to you its a long process. Sorry about the spelling

You may also like...

Knee problem linked to PMR?

normal and I was feeling pretty optimistic. Then last Sunday my left knee started to play up...

Pmr and heart problems

always have been given blood pressure tablets along with statins when on steroids. I feel I was...

update PMR or Neck Problem

got PMR & wants me off the steroids. I’m worried now in case I reduce and I really have got PMR...

Strange blood and balance and pmr?

First i have to say I am in PMR and GCA remission on no pred at the moment, touch wood. So why am...

PMR dealing with vision problems

this site as I am having vision problems due to my PMR and my medication which is prednisolone I...