Hi I am new on here and have been reading lots of posts on reducing predictions.
I don't know if I am lucky or not!!!!
I was diagnosed with PMR Feb 2014 could hardly move and turn over in bed had tests for Addisons/PMR & Fibromyalgia but what was worrying me was my son getting married in Las Vegas in the April and me not getting there (10 hour flight from UK) my GP started me on 15mg Pred by the wedding I was on 12.5 and felt great by October 2014 down to 7 had a flare up GP put me back to 10mg. I had very bad anxiety attacks so off my own back decided to reduce to 7 again. My Rheumatologist ...who was great said it was drastic but if I had a flare up to only go back to previous dose. I have now got down to 1mg by reducing 1day a week the next week reduce 2 so it takes me 7 weeks to do. But when I have reduced I stay on that dose for 12 weeks then start reducing again , the pain I have is not like PMR pain but is where my muscles feel fatigued and I have over done things. My job in retail is manual with lots of lifting and stretching....I knew I had over done it Christmas week getting reading for sale as my shoulders were tender. I am now reducing to come off pred and I have a muzzy head and ache a bit but I have found exercise has helped all the way through even when I was in pain and could hardly move and tired I still walked round the block..about 1km. Also aromatherapy massage has helped or Thai massage. The lady that does my Thai massage has PMR and understands what it is about, I really hope this gives some hope to anyone else.