Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,758 members • 39,025 posts

All posts for January 2017

Back in sunny Spain!

I am finding the sun every afternoon has certainly helped cheer me up about slowness of dealing with recovery from PMR. In November the advanced practise nurse...

I am finding the sun every afternoon has certainly helped cheer me up about slow...

sooWOO

•8 years ago

6 Replies

Dexascan

I was diagnosed with PMR in Sept 2015 and put on Prednisolone and Omeprazole, Calcium and Vit D, and AA. I am at last getting a Dexascan next week to see if I...

I was diagnosed with PMR in Sept 2015 and put on Prednisolone and Omeprazole, Ca...

Marcy47

•8 years ago

2 Replies

Tai Chi anyone?

I've just been following the thread from the post by Kitty49, and spotted a reply from piglette about Tai Chi. Coincidentally I've been wondering about how...

I've just been following the thread from the post by Kitty49, and spotted a repl...

Patience_1

•8 years ago

29 Replies

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Welcome from PMRGCAuk!

Welcome to the PMRGCAuk community on HealthUnlocked! Don't forget to tell us something about yourself on your profile! There's a wealth of personal insight,...

Welcome to the PMRGCAuk community on HealthUnlocked! Don't forget to tell us som...

Polywotsit

PMRGCAuk team member•8 years ago

4 Replies

New Year, new profile?

Hello all our amazing members (more than 3500 at the last count). We notice that most of you don't say anything about yourself on your profile, but if you do,...

Hello all our amazing members (more than 3500 at the last count). We notice tha...

Polywotsit

PMRGCAuk team member•8 years ago

31 Replies

Upcoming PMR/GCA Support Group Meetings

Bristol Support Group 12 Oct 2017 Randa Alshakh, Rheumatology Registrar at the BRI will be joining us, at 2.00pm, to advise how to manage our...

Bristol Support Group 12 Oct 2017 Randa Alshakh, Rheumatology Registrar at the...

Hidden

•8 years ago

3 Replies

No daily digest

Haven't had daily digest for 2 days and can only access through web page.

maria40

•8 years ago

2 Replies

Prednisolone

I would be very grateful for some advice about coated (can't remember the word!) or un coated prednisolone... is one more adventageous over the other? My GP...

I would be very grateful for some advice about coated (can't remember the word!)...

tgca

•8 years ago

19 Replies

Worried and bewildered

Initial diagnosis of PMR just before Christmas and now on 15 mgs of prednisone .....I am still not sure how I accessed this site but it's been a real blessing...

Initial diagnosis of PMR just before Christmas and now on 15 mgs of prednisone ....

Kitty49

•8 years ago

20 Replies

Im new here Information Required Please

I was diagnosed with P M R about 15 months ago. Have used Pred 30 mg once for about 4 weeks then Dr wanted me to reduce and get off the drug. Few pains since....

I was diagnosed with P M R about 15 months ago. Have used Pred 30 mg once for a...

MIKEHURREN

•8 years ago

5 Replies

PMR and GCA Research Hits the Road!

Ever wondered what research is going on in the world of PMR and GCA? Your UK national charity, PMRGCAuk is bringing patients, public and researchers together...

Ever wondered what research is going on in the world of PMR and GCA? Your UK na...

Polywotsit

PMRGCAuk team member•8 years ago

27 Replies

Improving

Hi wonderful friends with PMR I started on 10 mg in July and am now down to 4mg. I have been gradually reducing 1 mg per month but am in a bit of pain in my...

Hi wonderful friends with PMR I started on 10 mg in July and am now down to 4mg....

Rabbit1951

•8 years ago

4 Replies

Blood test results

Hi, Ive had PMR and GCA for 5/6 years, still on 5mg prednisilone. My blood tests this month showed some abnormalities - Serum C reactive protein level - 14mg/L...

Hi, Ive had PMR and GCA for 5/6 years, still on 5mg prednisilone. My blood tests...

heli13

•8 years ago

4 Replies

GCA - now- PMR too

I have had GCA for three years this month. After being on 1 mg. for 2 months, my doctor reduced me to 1-0-1-0-1-0. I started having upper leg pain behind my...

I have had GCA for three years this month. After being on 1 mg. for 2 months, m...

grannma

•8 years ago

10 Replies

Brain fog: I think it's going to be one of those days...

My husband often mislays his mobile phone indoors, and the simplest way to find it is to give it a ring. Simple. Works every time. However... this morning...

My husband often mislays his mobile phone indoors, and the simplest way to find ...

JanetRosslyn

•8 years ago

21 Replies

on 20 mg pred since nov 1 only last few days pain subiding

i am new to this site, but would like to know, if it is unusual for a dose of 20 mg to acutally take 2 and 11/2 mos before noticing the pain in my shoulders,...

i am new to this site, but would like to know, if it is unusual for a dose of 2...

arvine

•8 years ago

4 Replies

New to this

Hi I'm due to reduce my pred from 20mg to 15mg tomorrow ( been on pred 20 for 2 weeks) yet not due to see rheumatologist for another 2 weeks. Hopefully all...

Hi I'm due to reduce my pred from 20mg to 15mg tomorrow ( been on pred 20 for 2 ...

Jude62

•8 years ago

17 Replies

Steroid reduction

Ok so I saw opthalmolgist and I was on 60mg for positive GCA been on it for three weeks...So he reduced it to 30mg...my ESR low and crp low...but today...

Ok so I saw opthalmolgist and I was on 60mg for positive GCA been on it for thre...

lyndamcw

•8 years ago

34 Replies

Shingles

I have GCA and am currently on 7.5 mg of prednisolone. About 10 days ago I developed a rash around the left side of my waist which turned out to be shingles. I...

I have GCA and am currently on 7.5 mg of prednisolone. About 10 days ago I devel...

Wengen

•8 years ago

8 Replies

Off 1 month from steroid still facing insomia

Diagnosed with ITP in august since then started with high dose to low dose of 5mg alternate days..It has been a month still facing insomnia. .Any idea by when...

Diagnosed with ITP in august since then started with high dose to low dose of 5m...

Avantidave1988

•8 years ago

9 Replies

Continuation of cold plus possible further infection/food poisoning

Wrote a couple of days ago re the above. Just thought I'd update folk on what happened next. Went to see a doctor in my practice on Thursday,who I've not seen...

Wrote a couple of days ago re the above. Just thought I'd update folk on what ha...

Jackoh

•8 years ago

16 Replies

Flare up of symptoms.

Have had PMR for12 months,doing OK until a few weeks ,ago sore throat,cough,etc.,now I am experiencing,increased pain,facial flushing,spots on my...

Have had PMR for12 months,doing OK until a few weeks ,ago sore throat,cough,etc....

Pieater67

•8 years ago

4 Replies

Nursery diane

Hi My name is Diane. I am an advanced practice nurse. I was diagnosed with pmr on DEC 19, 2016. I also have ms that I have had for 23 years with relatively no...

Hi My name is Diane. I am an advanced practice nurse. I was diagnosed with pmr ...

nurseydiane

•8 years ago

12 Replies

In good hands - new Rheumatologist!

I had my first appointment with Dr Mackie at Wharfdale Hospital in Otley, thanks to a recommendation from PMRpro. I just wanted to share the sheer healing joy...

I had my first appointment with Dr Mackie at Wharfdale Hospital in Otley, thanks...

SheffieldJane

•8 years ago

32 Replies

Thoughts on brain fog?

Once again I am trying to figure out PMR. Yesterday I came home from work beause my brain was so fatigued it just shut down. I work at at an elementary school...

Once again I am trying to figure out PMR. Yesterday I came home from work beause...

bunnymom

•8 years ago

13 Replies

I'm new to this

I started prednisolone 2 weeks ago after a "diagnosis" of PMR following weeks of unbearable pain. Am currently reading Kate Gilbert's brilliant book but...

I started prednisolone 2 weeks ago after a "diagnosis" of PMR following weeks o...

Jude62

•8 years ago

8 Replies

2nd Flare ???

Hi all you kind people My last post was over 3 months ago, and progress slow but not so bad, however during the last 3 weeks I guess I had a second Flare, I...

Hi all you kind people My last post was over 3 months ago, and progress slow but...

zarzis

•8 years ago

13 Replies

Stress and possible flare

I wonder what people's thoughts are on my latest experience. I was started on 20 mg of prednisolone in June, successfully reduced one mg a month until I was...

I wonder what people's thoughts are on my latest experience. I was started on 20...

Brixhamhampster

•8 years ago

46 Replies

Prednisone Reduction with Methatrexate

I started on methatrexate 20mg subcutaneous two months ago at the same time as reducing my Prednisone. This is because of developing the side affects of...

I started on methatrexate 20mg subcutaneous two months ago at the same time as r...

NZShez

•8 years ago

10 Replies

Recurring pain ?

Hi I'm fairly new , was diagnosed back in may 2016, with PMR. I have posted a couple of times but mainly I read the posts , which help me enormously. I still...

Hi I'm fairly new , was diagnosed back in may 2016, with PMR. I have posted a c...

9lives

•8 years ago

28 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2017

Back in sunny Spain!

Dexascan

Tai Chi anyone?

Welcome from PMRGCAuk!

New Year, new profile?

Upcoming PMR/GCA Support Group Meetings

No daily digest

Prednisolone

Worried and bewildered

Im new here Information Required Please

PMR and GCA Research Hits the Road!

Improving

Blood test results

GCA - now- PMR too

Brain fog: I think it's going to be one of those days...

on 20 mg pred since nov 1 only last few days pain subiding

New to this

Steroid reduction

Shingles

Off 1 month from steroid still facing insomia

Continuation of cold plus possible further infection/food poisoning

Flare up of symptoms.

Nursery diane

In good hands - new Rheumatologist!

Thoughts on brain fog?

I'm new to this

2nd Flare ???

Stress and possible flare

Prednisone Reduction with Methatrexate

Recurring pain ?

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