I'm fairly new , was diagnosed back in may 2016, with PMR.
I have posted a couple of times but mainly I read the posts , which help me enormously.
I still seem to get this awful pain around the back of ribs or between shoulder blades area. It comes on goes. I first had it back in the summer and it normally last about a week to ten days. But the pain when moving , say getting out of bed or a chair is unbearable. It feels like a knot in my muscle that is going into a spasm/cramp.
I did post this in the past and had some really helpful replies, so apologies for repeating.
I am suffering again now, hence my post. This is my third time. So thought I would ask again about it.
I paid privately in November to see a rheumatologist, who came highly recommended to me, as GP not to helpful, he is a professor, and he carried out numerous blood tests ,X-rays and ultra scan. Etc.
Every thing was clear / negative , which is good as nothing untoward. But it's very frustrating not getting to the bottom of it. The rheumatologist feels it is not PMR related as when I adjust my steroids up/down,it has no effect on this pain. Plus all the original PMR pain seems to be under control.
He seems to think it is Possibly the muscles spasms/cramps and suggest If it returns to take a muscle relaxant drug. But only if necessary to help relieve pain.
The fact that it is just random don't help. I try to pin point things but each time it occurs but I can't find a connection with any thing . I haven't had a CT scan as yet, due to cost, as that would be the next stage, if I carried on privately. Also as the pain goes after a week or so and I was feeling much better , i decided to wait and see how things went.
The interesting thing is that each time it occurs it does seem slightly less painful and in a slightly different area.
I am due to see my GP tomorrow just for a review so will see what she thinks also.
Just wondering if anyone else having this sort of issue x
In addition to this ,just to ad insults to injury, I tripped over at the cash n carry two weeks before xmas and fractured my left arm , but surprisingly enough it is healing really fast. Must say the AnE were brilliant and the follow up appointments! Wish I could say the same about the PMR.
Hope you are all doing well and thanks for reading.