Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for January 2017

NOT "FOLLOWING" ?

Still very much a "newbie " but has sent and replied to couple of dozen nice people over past 3 days - but had flash on screen just now saying I am not...

Still very much a "newbie " but has sent and replied to couple of dozen nice peo...

winter10

•7 years ago

2 Replies

GCA and forgot meds

The day before yesterday I forgot my afternoon dose. I normally take 7 mg in the morning and 9 mg about 3pm. I normally get a reaction every time I reduce by...

The day before yesterday I forgot my afternoon dose. I normally take 7 mg in the...

christine2715

•7 years ago

3 Replies

I'm not going mad!!

Hi, I'm new here and glad I found this site. Finally, after months of badgering GP he now thinks I have PMR and being referred to Rheumatologist. Been taking...

Hi, I'm new here and glad I found this site. Finally, after months of badgering...

Hidden

•7 years ago

17 Replies

Want to take advantage of all our features? Just log in!

Anyone have cutis marmorata?

Hi im new here. My name is jackie i have cutis marmorata all over my body and have psoriasis and just been diagnosed with psoriatic arthritis. Im real curious...

Hi im new here. My name is jackie i have cutis marmorata all over my body and ha...

princssjackieo

•7 years ago

7 Replies

First rheumatologist appointment on the 16th

Hi everyone this is my first post. I'm a 57 year old female and have had pmr for just over 3 years I've been as low as 4mg of pred but at present on 11.5 the...

Hi everyone this is my first post. I'm a 57 year old female and have had pmr for...

Hidden

•7 years ago

1 Reply

Specific Pain returned when reducing to 5 MG Pred

Frustrating Diagnosed with PM our last April. Started at 12 MG Pred, then slowly started reducing half a milligram every three weeks. Went to five MG,...

Frustrating Diagnosed with PM our last April. Started at 12 MG Pred, then slow...

Dwid

•7 years ago

5 Replies

Looks like it's not GCA but possible PMR

I've been avidly following this forum since mid November & have already been greatful for advice on another post I wrote. I've been for my rheumatology...

I've been avidly following this forum since mid November & have already been gre...

Mandrose

•7 years ago

9 Replies

Blood test results

Is a CRP of 14 and an ESR of 21 considered high ? The print out states "no follow up needed " I'm on 6mgs of Pred, [ slow taper ] feeling very...

Is a CRP of 14 and an ESR of 21 considered high ? The print out states "no...

bowler

•7 years ago

10 Replies

Temporary increase

Just a quick question - I asked a few days ago about going up from 5mg to 10 mg for a short time and then going straight back to 5mg. PMRpro on here said that...

Just a quick question - I asked a few days ago about going up from 5mg to 10 mg ...

suethompson99t

•7 years ago

6 Replies

Night sweats

I am new to this site after being diagnosed with PMR in October I am currently taking 10mgs a day prednisolone. Since taking them my pain have gone but get...

I am new to this site after being diagnosed with PMR in October I am currently t...

mariandrakeford52

•7 years ago

21 Replies

MY BLOOD TEST RESULTS!

Hey everybody, GP gave my blood results on Tuesday PMR - apparently CPR showed 8mg/L where normally would be between 1-5. I could have burst into tears with...

Hey everybody, GP gave my blood results on Tuesday PMR - apparently CPR showed 8...

winter10

•7 years ago

12 Replies

Sed rate okay CRP not as high as expected

Took almost 4 months to get a rhematologist appointment. Went to my GP and told him I was having trouble sleeping, my shoulder hurt and having trouble moving...

Took almost 4 months to get a rhematologist appointment. Went to my GP and told...

RNRN

•7 years ago

17 Replies

Is this GCA ?

Hi I've been reading posts on here and thought I would write my own. I'm 52 and went to my GP about 6 weeks ago having developed a sore patch on the side of...

Hi I've been reading posts on here and thought I would write my own. I'm 52 and...

Elfarron

•7 years ago

6 Replies

HELP - Cant log in -

I cannot log-in today - have tried 3 times to change my password this afternoon to try and rectify situation, but no feedback saying ok - nothing happens when...

I cannot log-in today - have tried 3 times to change my password this afternoon...

winter10

•7 years ago

5 Replies

Down the rabbit hole.....

......... Background & PMR Question .......... I have now been on Pred for PMR for 6 months: 6 weeks at 15mg, 4 weeks at 12.5mg, 4 weeks at 10mg, 52 days...

......... Background & PMR Question .......... I have now been on Pred for PM...

hopeful-1

•7 years ago

5 Replies

Aches in arm/shoulder

I am currently on 10 mg pred for GCA and am not in any immediate hurry to decrease the dose during the winter as I think we are too susceptible to infections...

I am currently on 10 mg pred for GCA and am not in any immediate hurry to decrea...

tgca

•7 years ago

7 Replies

I am new to polymyalgia

Been diagnosed by GP with fibromyalgia but a friend who has poly says it sounds more like poly, due to severe pain in the neck and shoulders. I will talk to...

Been diagnosed by GP with fibromyalgia but a friend who has poly says it sounds ...

gogglebox123

•7 years ago

2 Replies

Pneunomia Vaccination

I am due to have my first jab for the above but I have a condition called CLL and at my last blood test the Consultant informed me there were now slight traces...

I am due to have my first jab for the above but I have a condition called CLL an...

1rattlermalc

•7 years ago

3 Replies

Dosage Advice Please

Diagnosed with GCA 2 years ago, had a couple of flares over time, was down to 18 mg of pred. 2 days ago I woke up with a headache and blurry right eye which...

Diagnosed with GCA 2 years ago, had a couple of flares over time, was down to 18...

Ronnie101

•7 years ago

5 Replies

PMR and TGA will it ever go ???

Hi, I am new on here and had my very bad flare up of TGA which I thought was my migraines 4 years ago and on within 3 days was on 60mg of preds, eye clinic, no...

Hi, I am new on here and had my very bad flare up of TGA which I thought was my ...

Margaret1951

•7 years ago

27 Replies

back from the doctors

Hi Thank you for the replies i should have written Musculoskeletal on my last post the doctor thought he must of done damage when he examined me pulling and...

Hi Thank you for the replies i should have written Musculoskeletal on my last p...

Kay60

•7 years ago

2 Replies

p

Polymyalgia rheumatica, Hi, I am new to this kind of business, anyway I have had this problem for about 14 years,started on very high dose of Prednisolone 30mg...

Polymyalgia rheumatica, Hi, I am new to this kind of business, anyway I have had...

Brabazon

•7 years ago

3 Replies

Time to take back my life

Had gca for 2 years now, on 3mg of steroid and toxicilimab monthly infusions. This is the best I've felt in 2 years. Time to take back all I lost to gca. So...

Had gca for 2 years now, on 3mg of steroid and toxicilimab monthly infusions. Th...

jeannette65

•7 years ago

17 Replies

PMR Testosterone

I was a healthy fit 54 year old man when PMR hit me virtually overnight in April 2016 Prior to that at my physical my testosterone levels were 430. After 8...

I was a healthy fit 54 year old man when PMR hit me virtually overnight in April...

Edtx

•7 years ago

1 Reply

Unfeeling unheard 2

Hi Everyone, This is a continuation of my "feeling Unheard" post. Have had PMR symptoms since July 16 and GCA symptoms since Sept 16. I have seen 2...

Hi Everyone, This is a continuation of my "feeling Unheard" post. Have had PMR...

vsapey

•7 years ago

12 Replies

Need advice

I have posted for ages as I have been doing really well started on 20mg March 2014 now down to 4 My problem is I went to see a Skelton person last Thursday...

I have posted for ages as I have been doing really well started on 20mg March 20...

Kay60

•7 years ago

5 Replies

Still not well enough to go back to work

Hi all Have been off work since Nov 16 but still don't feel well enough to go back to work. I work in the community and do a lot of driving I'm struggling...

Hi all Have been off work since Nov 16 but still don't feel well enough to go b...

Stanley123

•7 years ago

12 Replies

Eye discomfort with PMR?

Hello All - I am fairly new to this and was diagnosed on Dec. 19th 2016. I am on a prednisone protocol as per my rheumy and I am feeling better. I was...

Hello All - I am fairly new to this and was diagnosed on Dec. 19th 2016. I am ...

nymima01

•7 years ago

3 Replies

Thank you

Just had to write to thank everyone for making me not feel so guilty about having to cancel my trip to Hawaii tomorrow. My daughter was taking her family to a...

Just had to write to thank everyone for making me not feel so guilty about havin...

30048

•7 years ago

3 Replies

Help please

I am new to PMR only been diagnosed recently on a cruise in the Caribbean l am suffering pain in most joints does anyone know if a heat pad will help to...

I am new to PMR only been diagnosed recently on a cruise in the Caribbean l am s...

Hurdles

•7 years ago

4 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2017

NOT "FOLLOWING" ?

GCA and forgot meds

I'm not going mad!!

Anyone have cutis marmorata?

First rheumatologist appointment on the 16th

Specific Pain returned when reducing to 5 MG Pred

Looks like it's not GCA but possible PMR

Blood test results

Temporary increase

Night sweats

MY BLOOD TEST RESULTS!

Sed rate okay CRP not as high as expected

Is this GCA ?

HELP - Cant log in -

Down the rabbit hole.....

Aches in arm/shoulder

I am new to polymyalgia

Pneunomia Vaccination

Dosage Advice Please

PMR and TGA will it ever go ???

back from the doctors

p

Time to take back my life

PMR Testosterone

Unfeeling unheard 2

Need advice

Still not well enough to go back to work

Eye discomfort with PMR?

Thank you

Help please

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