Wrote a couple of days ago re the above. Just thought I'd update folk on what happened next.
Went to see a doctor in my practice on Thursday,who I've not seen before. I went just to be checked over as I still felt a bit lethargic and urine was not as clear as it should have been despite drinking a lot of water.
Unfortunately he questioned my diagnosis, why I was on 19mg, why I hadn't decreased my dose much quicker and basically if I had infections then it was my own fault for being on such a dosage. We had a slight discussion/ disagreement and then he took my blood pressure which was raised, due he said to the level of Pred I was on, I said it was the discussion that we had just had( my blood pressure is never high)
I did though persuade him to check me for a chest infection and ear infection and I asked for a blood request form for CRP and ESR. I went to the hospital and had it tested.
My CRP on diagnosis was 1 and my ESR had reached the steady heights of 18. I therefore assure others that they can have symptoms of PMR without raised bloods.
Next day Friday, the same doctor rang to say my CRP reading was 250 and my ESR 48 and to go to A&E immediately, which I did.
Infection levels at the hospital were retested and were still raised although because of trust policy they couldn't take the CRP reading again until Monday!!
After a 9 hour wait at the hospital and no empty beds ( they had wanted to keep me in and give me antibiotics intravenously) I came home with two lots of antibiotics with the proviso if I felt any worse to go back in.
They still couldn't really find what the problem was really to give such a high reading: I didn't have a chest infection or urine infection. There was slight inflammation in the lungs but not built up to be classified as pneumonia. They did say though that they had found a bacterial infection on top of my viral infection.
I don't know what the moral of this story is really but perhaps when feeling unwell and doctor rules everything out to ask for blood test?