Welcome from PMRGCAuk!

Welcome to the PMRGCAuk community on HealthUnlocked! Don't forget to tell us something about yourself on your profile!

There's a wealth of personal insight, support and information here. The members of the forum are lay people, not medical experts. Many people have complex combinations of conditions, especially when we are getting older. Posts on the forum cannot take the place of your relationship with your doctor and your medical team. Do discuss with your doctor before making any changes to your medication or other ways that you are managing your condition.

Visit our website pmrgca.org.uk for info about support groups, helpline and other resources. You can also find us on FB facebook.com/pmrgcauk and twitter@PMRGCAuk. We are unable to endorse any particular products or therapies for PMR or GCA. If you wish to post promotional material for any commercial product or service, please contact chair@pmrgca.org.uk beforehand.

All are services are free, but we rely on donations and PMRGCAuk member subscriptions - just £10 a year. We need you to join us! Enjoy the online support here on healthunlocked!

The PMRGCAuk team.

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  • i was diagnosed on Monday with PMR. New to the diagnosis and trying to understand.

  • Where do I donate

  • I am a newbie. Started taking 15mg preds yesterday morning. Woke at 3.30 am with unpleasant feeling of restlessness in my muscles. Can only describe it as a sort of wrything or shuddering impulse. Not painful but preventing me from sleeping. Now it is 5.20 am and I have been reading posts here. So glad I found you!! I have 2 questions. Is this horrid restlessness usual on taking preds? Also I thought I had joined here, but can not log in and the only way i can post is by this answer. how do I post a question?

  • I'm also a newbie and this forum is so helpful. Lots of experts with good advice. Re how to post a question if you tap on top left hand icon (looks like a newspaper page) that takes you to option to write post. Pred does take a bit to get used to but benefits are worth it. My dose was upped from 15 to 60 a few days ago. Maybe why I've been awake since 4am 😂 but in bed so I'm resting. Welcome to the club and the aunties will be along soon with their knowledge. Watch out the silly uncle too

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