Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,313 members • 38,050 posts

All posts for November 2016

HELP WITH PMR MEDS

Hi, I am a newbee and think I have had symptoms for about a year. Eventually diagnosed 3 1/2 mths ago with PMR. Have read on this great website how Dr said...

Hi, I am a newbee and think I have had symptoms for about a year. Eventually di...

•7 years ago

GCA and weight loss

Had GCA confirmed late September 16 put on 60 mg steroids reduced to 40 mg after three weeks now on 30mgs ,not seen a consultant until 21Nov,have lost my...

Had GCA confirmed late September 16 put on 60 mg steroids reduced to 40 mg after...

•7 years ago

Had my first Zoledronic Infusion on Wednesday

I've had G.C.A. since December 2013. Prednisolone at 9mg and my Rheumatologist is lowering it very slowly. I was warned about flu like symptoms after the...

I've had G.C.A. since December 2013. Prednisolone at 9mg and my Rheumatologist i...

•7 years ago

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Floundering esr and predisone

Pro help. If you recall I posted that my ESR went from 6 to 17 to 27 to 31. I was on 10 mg when this started I had been on 10 mg for three weeks when the ESR...

Pro help. If you recall I posted that my ESR went from 6 to 17 to 27 to 31. I w...

•7 years ago

What are labs please

I read on many of the posts that people have their labs done. Could someone tell me what these are. I guess it is an abbreviation for something.

I read on many of the posts that people have their labs done. Could someone tell...

Brixhamhampster

•7 years ago

Shoulders n neck stiff n sore

Ok I do not know the difference between drug withdrawal and PMR/GCA. Did the slow taper from 17.5 to 16. Had labs done yesterday. Don't know if I should stay...

Ok I do not know the difference between drug withdrawal and PMR/GCA. Did the slo...

•7 years ago

Leflunomide

My consultant has recommended Leflunomide since I have been unsuccessful at tapering the Prednisolone below what he regards as high levels. I have just...

My consultant has recommended Leflunomide since I have been unsuccessful at tape...

•7 years ago

CRP and Rheumy

I have been to see the rheumy nurse to arrange for my second infusion of Zolendronic acid. She told me that my wonderful rheumy (Prof Symmonds of Manchester)...

I have been to see the rheumy nurse to arrange for my second infusion of Zolendr...

•7 years ago

Advice needed about diet.

Hi, has anybody successfully followed Slimming World with pmr. I have cut right down on my carbs but feel like even after a few days I am putting weight on....

Hi, has anybody successfully followed Slimming World with pmr. I have cut right ...

•7 years ago

Smokey eyes

Hi everyone, this morning I had a sharpish pain in left eye which made me squint, then my vision was as though I was in a smokey room. I squinted again to...

Hi everyone, this morning I had a sharpish pain in left eye which made me squint...

•7 years ago

Definitive diagnosis of PMR! Phew

Happy to have a definitive diagnosis and to recommence steroids. She's started me on 15 mg for 1 month and afterwards decreasing by 1 mg each 15 days. If...

Happy to have a definitive diagnosis and to recommence steroids. She's started...

•7 years ago

Steroid reduction

Just had call to say my markers are up following blood test and dr would be calling me. I've reduced after a flare from 17.5mg and now on 7.5. Reduced to this...

Just had call to say my markers are up following blood test and dr would be call...

•7 years ago

I'm lost

I have been reading today about the blood tests done for pmr I am having my results today and as I understand it by some of the posts is if the results show...

I have been reading today about the blood tests done for pmr I am having my res...

•7 years ago

Manchesterlady

Advise please I was started on 30mg pred for three days last week , reduced to 20mg for 1 week , dropping to 15 mg after that for three week . Back for blood...

Advise please I was started on 30mg pred for three days last week , reduced to 2...

•7 years ago

Finally been taken seriously!

Just introducing myself. I've been on the healthunlocked AF site for a few years, but new to this forum. I'm 60 very fit, run, do Pilates etc, but since...

Just introducing myself. I've been on the healthunlocked AF site for a few year...

•7 years ago

Famous 5mg limit of Predisone

Good morning everybody I also managed to get down to 7mg Predisone on 30th August and went down to 6mg Predisone 2 weeks later. My ESR rose to 41 and my...

Good morning everybody I also managed to get down to 7mg Predisone on 30th Augus...

•7 years ago

Hold off on prednisone reduction for holiday week?

Good evening all... I'm 6 weeks post diagnosis PMR GCA. Prednisone 60mg for 2 weeks then down by 5mg the following weeks. I feel as though I have had a whole...

Good evening all... I'm 6 weeks post diagnosis PMR GCA. Prednisone 60mg for 2 we...

•7 years ago

Above 5mg again

Staying at 7 now for awhile. After having PMR for over 4 years going below 5mg just always returns to bit me!!! PMR Pro and Dorset Lady I tried 6 mg for a few...

Staying at 7 now for awhile. After having PMR for over 4 years going below 5mg j...

•7 years ago

Tabs for pain

I've really reached the limits of pain &"all other issues I've taken 5mg of oxynorm & 2 hours later took 10'mg of diazipam will I be OK ! it was stupid I know...

I've really reached the limits of pain &"all other issues I've taken 5mg of oxyn...

•7 years ago

Physiological level?

Hello again it is Brixham hampster with yet another query. I have today reduced to 7mg of prednisolone and I read somewhere that this is the physiological...

Hello again it is Brixham hampster with yet another query. I have today reduced ...

Brixhamhampster

•7 years ago

steroids

i have been given steroids for this condition and been told what they can do to my body, i.e. brittle bones, diabetes etc. my question is - are these...

i have been given steroids for this condition and been told what they can do to ...

•7 years ago

Feeling unheard

Just spent ages writing my story then whoosh it disappeared. So I am bullet pointing main facts. Had rheumatologist appt today to discuss GCA/PMR. PMR symptoms...

Just spent ages writing my story then whoosh it disappeared. So I am bullet poin...

•7 years ago

Pain relief

Hi does anyone take OxyContin in morning & evening also oxynorm in between?? I'm on so much medication for other health issues .would appreciate anyone...

Hi does anyone take OxyContin in morning & evening also oxynorm in between?? I'm...

•7 years ago

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