Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for November 2016

Having a cold and tapering?

Have gone from 12.5 to 11. Have been on 11 now for 2 days. Have felt pretty draggy but otherwise ok. Drove 3 hours yesterday to visit granddaughter for 4...

Have gone from 12.5 to 11. Have been on 11 now for 2 days. Have felt pretty drag...

bunnymom

•7 years ago

8 Replies

How autoimmune disorders happen

This was posted on the lupus forum a couple of days ago. It explains as a cartoon film how the immune system goes wrong to cause autoimmune disease....

This was posted on the lupus forum a couple of days ago. It explains as a cartoo...

PMRpro

Ambassador•7 years ago

17 Replies

A baffling virus

Wow! What an unbelievable month of pain. I have PMR/GCA. I am in Actemra monthly infusions for the GCA, and have slowly reduced the prednisone to 4mg....

Wow! What an unbelievable month of pain. I have PMR/GCA. I am in Actemra monthl...

Joyful13

•7 years ago

11 Replies

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Ideas for working from home?

I'm very interested in hearing what people have found possible in terms of working from home, or working in a reduced capacity because of their health. It's...

I'm very interested in hearing what people have found possible in terms of worki...

CloudGazer6

•7 years ago

14 Replies

Let it be?

I am new here Hello to all the members of my community. I was diagnosed two weeks ago with pmr. My gp found out within 15 minutes and lab confirmed it So I am...

I am new here Hello to all the members of my community. I was diagnosed two wee...

Zofitmogelijk

•7 years ago

12 Replies

Painful shoulder, following pneumonia jab

Hello everyone! Just wondering if anyone else has experienced severe pain, following a pneumonia jab. I had mine, two days ago, and the nurse warned me that...

Hello everyone! Just wondering if anyone else has experienced severe pain, foll...

Mrsd12f

•7 years ago

5 Replies

Respiratory Symptoms and alarm

For the last few days I have had a thinly running nose, followed by a slightly infected nostril. Yesterday my nose was so blocked I couldn't breathe, neither...

For the last few days I have had a thinly running nose, followed by a slightly i...

SheffieldJane

•7 years ago

10 Replies

What to buy OH for Christmas

As Christmas is looming again I thought I'd tell you how to bring back that childhood feeling of the excitement at being faced with a pile of presents not...

As Christmas is looming again I thought I'd tell you how to bring back that chil...

ShellyC23

•7 years ago

13 Replies

First Rheumy Appointment Coming Up

Having been reading posts on this site avidly for past few months and it is amazing what I have learnt. I have stopped taking my Alendronic Acid and Omezaprole...

Having been reading posts on this site avidly for past few months and it is amaz...

Lochy

•7 years ago

8 Replies

ESR dropped to 2

Hi. I have been experiencing PMR symptoms for the first time when my steroid dose for GCA dropped to 7 then 6. My ESR went from 28 up to values 37-44. Last...

Hi. I have been experiencing PMR symptoms for the first time when my steroid dos...

granny-b

•7 years ago

8 Replies

Bloods are ok

Why does blood tests show no inflammation. I have been diagnosed with PMR and I was surviving on 5mg of predi but weaned down to 1mg suffering bad yet blood...

Why does blood tests show no inflammation. I have been diagnosed with PMR and I...

Gypsylass

•7 years ago

10 Replies

Re: Flare

Please can I ask, can you have a flare (head & neck pain, feel dreadful) with a low CRP & ESR? Thank you Marion7

Please can I ask, can you have a flare (head & neck pain, feel dreadful) with a ...

MARION7

•7 years ago

19 Replies

Doctor Visit

Saw the doctor yesterday ESR is quite high (I had been off the pred for 3 months) I went back on right after the last dr visit so we will have to see any...

Saw the doctor yesterday ESR is quite high (I had been off the pred for 3 months...

jevuki

•7 years ago

6 Replies

Husband has COPD, Polymyaligia

Greetings, I am concerned about my husband. He is 62, diagnosed with COPD in the early phases right now but his cough is progressively getting worse, he still...

Greetings, I am concerned about my husband. He is 62, diagnosed with COPD in the...

Hidden

•7 years ago

6 Replies

Reducing my meds again

Hi all just got back from my GP and she said my bloods were all ok from last week and as I said in my previous post she dropped me down to from 60 mg on 27th...

Hi all just got back from my GP and she said my bloods were all ok from last wee...

Gran6

•7 years ago

12 Replies

Smokey eyes

Hi all! Re my last post smokey eyes. I've been to gp and optician and my eyes, which have cleared now, are fine, although there are small signs of cataract...

Hi all! Re my last post smokey eyes. I've been to gp and optician and my eyes,...

JJackdaw

•7 years ago

20 Replies

Fissamax or not

What is the option on Alendronic Acid (fossamax)..my dexa scan was normal I am new to this just been on 15mg pred for two months reducing to 14 now Thank you...

What is the option on Alendronic Acid (fossamax)..my dexa scan was normal I am n...

lyndamcw

•7 years ago

5 Replies

Slightly thinning bones

Had my first dexascan last week. Nurse called tonight and said it showed slightly thinning bones. I was told to take 1500 mg calcium which I thought I was but...

Had my first dexascan last week. Nurse called tonight and said it showed slightl...

bunnymom

•7 years ago

33 Replies

Support group meetings this week

A bit late for planning, I know, but just in case anyone is looking for information about groups - Bath Meet Up - Monday 7th November, 2pm at Garfunkels, more...

A bit late for planning, I know, but just in case anyone is looking for informat...

Polywotsit

PMRGCAuk team member•8 years ago

2 Replies

GP diagnosed pmr before bloodwork done

yes, my gp diagnosed me with pmr before any bloodwork done, and started me on 40 mg pred oct 12, because my level of pain had reached such an intolerable...

yes, my gp diagnosed me with pmr before any bloodwork done, and started me on 40...

arvine

•8 years ago

20 Replies

PMR mild?

Sometimes I wonder if I have PMR? My GP says I have and my Rhumy says I have. Deep down I know I have but when I read and here other people's stories I do...

Sometimes I wonder if I have PMR? My GP says I have and my Rhumy says I have. De...

Zellamze

•8 years ago

20 Replies

The Shingles vaccine debate - and PMR

I had totally forgotten that I found this bit of info well over a year ago when the usual question about the shingles vaccine was asked and wrote a post about...

I had totally forgotten that I found this bit of info well over a year ago when ...

PMRpro

Ambassador•8 years ago

21 Replies

Left TMJ arthritis

Does anyone else happen to have arthritis in their tmj/jaw? i've had it it for a few years now on the left tmj, my disc is gone & the joint is bone on bone...

Does anyone else happen to have arthritis in their tmj/jaw? i've had it it for ...

missmylefteye

•8 years ago

8 Replies

Weak arm

Hi. I am gradually reducing steroids on the slow slow method. I am now on 5mg. Started on 15mg in April 2015 for PMR. With a few ups and downs. I have a...

Hi. I am gradually reducing steroids on the slow slow method. I am now on 5mg. S...

Jennykk

•8 years ago

17 Replies

diagnosing pmr

started to be treated for pmr by gp, on oct 12th, at 40 mg pred, had seen him week or so prior to that, and asked for referral to rheumy, at any rate, no...

started to be treated for pmr by gp, on oct 12th, at 40 mg pred, had seen him we...

arvine

•8 years ago

3 Replies

Pelvic muscle

Does anyone know if GCA/PMR can effect the pelvic. Floor muscles. I have a massive prolapse on the posterior wall, Sudden onset.

Does anyone know if GCA/PMR can effect the pelvic. Floor muscles. I have a massi...

vsapey

•8 years ago

8 Replies

Glad to have a new neurologist now

I feel like i have a good neurologist now. i saw him last week. waiting on insurance to approve mri angiography, i think, and a lumbar puncture to cover any...

I feel like i have a good neurologist now. i saw him last week. waiting on insur...

missmylefteye

•8 years ago

3 Replies

Reducing prednisone

What a horrible week, very stressed, crying, have a UTI infection. Rheumatologist was so unhelpful. When I went he was so dismissive, wouldn't listen to me...

What a horrible week, very stressed, crying, have a UTI infection. Rheumatologis...

vsapey

•8 years ago

24 Replies

Extra stiffness - Shellfish

Hi, I've had diagnosed PMR for two years now (down to 3mg a day from 20mg) and I've noticed that if I eat shellfish the stiffness almost paralysis in fact, is...

Hi, I've had diagnosed PMR for two years now (down to 3mg a day from 20mg) and I...

Whiskey2

•8 years ago

5 Replies

HOLIDAY MAGIC

Hello, its me again.Last time i posted here i was anxious about going on holiday, everyone here was so positive that it eased my worries. I am delighted to...

Hello, its me again.Last time i posted here i was anxious about going on holiday...

Hidden

•8 years ago

6 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2016

Having a cold and tapering?

How autoimmune disorders happen

A baffling virus

Ideas for working from home?

Let it be?

Painful shoulder, following pneumonia jab

Respiratory Symptoms and alarm

What to buy OH for Christmas

First Rheumy Appointment Coming Up

ESR dropped to 2

Bloods are ok

Re: Flare

Doctor Visit

Husband has COPD, Polymyaligia

Reducing my meds again

Smokey eyes

Fissamax or not

Slightly thinning bones

Support group meetings this week

GP diagnosed pmr before bloodwork done

PMR mild?

The Shingles vaccine debate - and PMR

Left TMJ arthritis

Weak arm

diagnosing pmr

Pelvic muscle

Glad to have a new neurologist now

Reducing prednisone

Extra stiffness - Shellfish

HOLIDAY MAGIC

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