After over two years with GCA, I had reduced the pred to 4mg and was getting on well on that dose. My problems with weakness and pain in my legs had also improved. On my visit to the hospital clinic 5 weeks ago the registrar suggested reducing to 3mg and on to 2mg. I was just over half-way down to 3mg using the dead slow method, when the pain in my head came back which is a dreadful disappointment. My GP, who diagnosed the GCA originally and has been a tower of strength, put me back on to 5mg with the threat of going much higher if the pain did not recede. That was 5 days ago and there has been a very slight improvement. My question is: am I doomed to going higher or will the pain settle with 5mg considering I was doing well on 4mg? Obviously, I don't want to risk losing my sight but the thought of going back to a high dose and all the problems that caused me is terrifying. Surely after over two years I should be better? My very cocky consultant told me I would be better last September and that he had never failed to cure a patient!
Problems with tapering: After over two years with... - PMRGCAuk
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