PMRGCAuk
6,799 members10,605 posts

Wedding Mission

I just wanted to share that my sons wedding went off without a hitch, but I was a wreck and in major pain barely could walk let alone dance. So I stood in the middle of the crowd on the dance floor and bopped upper body to the music. He will only get married once so I pushed and made the best of it. Very fatigued now but am resting and doing everything I need to do. I am at 20mg of Pred and will start dead slow decline.......thank you all for sharing it helps me stay positive.

12 Replies
oldestnewest

Well done you. Glad you had an enjoyable, albeit fatiguing time. As you say, once in a lifetime - now you can concentrate on getting YOU better!

I'm sure he appreciated your effort- even if he didn't say so!

1 like
Reply

You did better than I did at my daughter's wedding! I sat there at the table wishing I was anywhere else - the music was SO loud and they wouldn't turn their amps down despite being asked. Most people disappeared elsewhere in the building - you'd have thought they might have got the message, but no. I was on crutches - even bopping upper body wasn't an option!

Hope it all settles down quickly and you feel better soon.

1 like
Reply

I just attended my son's wedding, coupled with my wife's birthday. Everything seemed to be going fine but then I ran out of steam and had an unexpected overnight at the reception hotel. No toothbrush or medication! I couldn't even drive the 25 miles home! I'm going to pace myself a little better at my other son's wedding (April in Paris - and allow for delays when allocating medicine doses).

I agree with PMR Pro on volume of amps and left as soon as I could.

1 like
Reply

My bed was upstairs from the venue - but it was actually my daughter (not the wedding one) who used it early! I go NOWHERE, even close to home, without 24 hours medication more than I will need for the planned trip - stuff the toothbrush! But Paris? I'd have at least a week extra!

And next time - I'll have bought very high class earplugs...

2 likes
Reply

Well done Jevuki!

There is so much to memories and you've made a lovely one. Some things are worth the pain. Good luck with your dead slow reduction,softly softly catchy monkey. 💐

Reply

Well done for managing to get ready and go . You pay the price but the children come first regardless. A once in a lifetime event and I'm sure it was a magical day for your son. x

1 like
Reply

Thank you all yes it was very memorable and worth the suffering I have now but he is my baby and last one to marry after a year of planning I was determined not to let PMR win!

Reply

Hope you get better soon so you can start your reduction.

My experience from dead slow at 20 mgs which I just did. I had stayed at 20 until the flare up disappeared as I do not want to go up n down. I was at 7 mgs when it was too much then back to 20 where I had tapered from every two weeks and 20 was where the break thru pains started.

Anyway I did 20 to 17.5 in the slow down and it has been fine. Now I will go to 15. Once I get to 10 I will stay there for a while then do 1 mg at a time.

My advice is don't start until you feel better so you don't have to yo-yo back and forth.

1 like
Reply

Thank you Lin-Calf I had rapid reduced when I had all the teeth issues and went off completely and it was a disaster. I started back at 20 and still don't feel 100% but will wean very very very slowly after about 2 months at 20mg

1 like
Reply

Well done, you managed to be there, something he will remember and value. xxx

1 like
Reply

Well done Jevuki: You will have the memories and so will he.

1 like
Reply

Well done, one of the things this horrible illness does is push us to a chair in the corner and isolates us. You stayed right in the middle of things and your memories of this are priceless.

1 like
Reply

You may also like...