I was diagnosed with PMR and GCA in May this year and put on 50 mg prednisolone with miraculous results and a feeling of euphoria! CRP level was 90 and plasma viscosity 1.84. Then tried to reduce as the Rheumatologist recommended by 5 mg a week, but symptoms returned, so went back up to the previous dose a few times ( as Rheumatologist recommended), not being sure whether to just try and cope with the pain. I only saw the rheumatologist once and he was not very communicative. I have been extremely depressed, and 'brain dead' for the past few weeks. I am taking antidepressants.My GP recommended staying on 25 mg pred for a month then reduce to 20 for a month. I saw a different Rheumatologist this week who was much more communicative and recommended that I reduce by 5 mg every 2 weeks until I get to 10mg and then by 1mg per month. She also said that the low mood could well be due to the steroids, and that when I reduce the dose I am likely to feel really awful for a couple of days. If this goes on longer, then I should have a blood test for inflammatory markers ( which are currently at normal levels) and see my GP to raise the dose if the markers are high. From reading and this forum it sounds like a much slower reduction is better, but the rheumatologist was keen for me to reduce quickly due to the side effects form prednisolone. I guess I should follow her advice, but feel anxious about this. My GP doesn't really seem to be very knowledgeable about PMR/GCA though he is very supportive, and my next appointment with the rheumatologist is due in 6 months time. Any comments?
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