Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for June 2016

AN UPDATE ON MY GCA REDUCTION JOURNEY & NO RETURN OF MPS

2 weeks ago I reduced to 7.5 mg and, to date, haven’t experienced any withdrawal symptoms or side effects., so may well venture down to 7 this weekend....

2 weeks ago I reduced to 7.5 mg and, to date, haven’t experienced any withdraw...

Hidden

•8 years ago

11 Replies

Plymouth Devon & Cornwall PMR/GCA meet up 15th June 10.30

Re: - Polymyalgia Rheumatica – Giant Cell Arteritis – Temporal Arteritis support meeting for the Devon & Cornwall Area PMRGCA UK is holding their next...

Re: - Polymyalgia Rheumatica – Giant Cell Arteritis – Temporal Arteritis suppor...

Hidden

•8 years ago

4 Replies

GCA flare up

Last night I had my first serious flare up. I had reduced my Predisilone to 45 mg from 50mg and my rheumy had increased the Pred sparing tablets to 4 per day....

Last night I had my first serious flare up. I had reduced my Predisilone to 45 m...

christine2715

•8 years ago

6 Replies

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Eye problem

I would appreciate advice please. Having recently experienced a flare I am down to 25 pred. but have acquired arthritic pain in both thumbs, together with...

I would appreciate advice please. Having recently experienced a flare I am down ...

Gb2613

•8 years ago

12 Replies

Backtracking to see if old symptoms were beginning of PMR...

I have spent hours reading links and references since I found this site. I read Kate's book cover to cover today. I'm beginning to think that I had several...

I have spent hours reading links and references since I found this site. I read ...

Zacsmimi

•8 years ago

27 Replies

Prominent Veins in Arms

Hello all looking for some more of your expert advice please :) I have GCA and PMR about 6 weeks ago I had visual disturbances and was advised by specialist...

Hello all looking for some more of your expert advice please :) I have GCA and P...

suszannah

•8 years ago

14 Replies

Eye Disturbances

Hello, I'm the daughter of an 81 year old who's been diagnosed with 'atypical' PMR. (So I and she are new to the community). She has also just been seen by...

Hello, I'm the daughter of an 81 year old who's been diagnosed with 'atypical' P...

Oscar66

•8 years ago

18 Replies

Pred..... Gastritis and Mouth Sores?

4 years before I was diagnosed with PMR (27th April 2016) I had investigations for mouth sores...not thrush. Told it was auto immune and that I also was...

4 years before I was diagnosed with PMR (27th April 2016) I had investigations ...

May10

•8 years ago

5 Replies

PMR/GCA – Personality Types, the Journey of Change, and Coping Strategies

Greetings to all here. I'm sorry this post is rather long (I can hear you all saying 'as usual'!) but it might help some here with the tricky topic of how to...

Greetings to all here. I'm sorry this post is rather long (I can hear you all ...

markbenjamin57

•8 years ago

36 Replies

Pip text messages PMR

Hi I'm new I've been diagnosed approx 4 years now with PMR. ITs been all down hill from there. I'm still on steroids and my Dr wants to get me off them. I...

Hi I'm new I've been diagnosed approx 4 years now with PMR. ITs been all down ...

Chrissielil

•8 years ago

10 Replies

I may have forgotten to take my preds today!!! Help!!

Oh dear I don't know if I have taken my preds today, normally I am well organized. No idea! What shall I do, have a busy day??? Please if anyone has an idea?...

Oh dear I don't know if I have taken my preds today, normally I am well organize...

isabella2015

•8 years ago

19 Replies

Listen to the doctor!!!

Having been diagnosed with PMR 5 months ago i started on 20mg pred and the pain difference was immense, started reducing slowly was down to 8mg, but the...

Having been diagnosed with PMR 5 months ago i started on 20mg pred and the pain...

Debswales

•8 years ago

9 Replies

I'm new here

Good evening gentle people. I've been diagnosed with PMR for 6 months and have just been diagnosed with GCA. My GP is doing a sterling job but basically this...

Good evening gentle people. I've been diagnosed with PMR for 6 months and have ...

MarkBenfield

•8 years ago

14 Replies

PMR/Carpel-tunnel update

I thought I would update after my visit to the rheumy after all the advice and support I had regarding PMR/Carpel Tunnel. My markers were raised as expected...

I thought I would update after my visit to the rheumy after all the advice and s...

patdencass

•8 years ago

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Fatigue? What's happening ?

An observation and a question here. It is going on 12 months since my diagnosis of GCA. My doctor and I have disagreed on whether .5 mg can make a...

An observation and a question here. It is going on 12 months since my diagnosis...

GinnyMa

•8 years ago

7 Replies

Non related spouse has PMR? Anyone else?

Ok- this is weird! My ex-partner has had PMR, apparently just got over a 2yr stint with it. I wonder if anyone else has had their partners, spouse, or...

Ok- this is weird! My ex-partner has had PMR, apparently just got over a 2yr sti...

klairv0yant

•8 years ago

8 Replies

Tapering: mixed queries

Many posts and replies cover the tapering of preds down to a low maintenance level and what to do about flare ups along the way and these are invaluable but...

Many posts and replies cover the tapering of preds down to a low maintenance lev...

binz

•8 years ago

5 Replies

Flare?

After being on prednisolone for so long I suppose I should know the answer to this but would welcome advice. I have PMR/GCA and have reduced very slowly since...

After being on prednisolone for so long I suppose I should know the answer to th...

maria40

•8 years ago

2 Replies

Oral thrush

I get recurrent oral thrush in my mouth and throat. Have Daktarin prescribed but wondered if anyone has any other suggestions. By the way thank you for the...

I get recurrent oral thrush in my mouth and throat. Have Daktarin prescribed bu...

Suetum

•8 years ago

13 Replies

PMR/GCA and now Pulmonary Fibrosis

I am looking for information/advice for my dad who was has had PMR and GCA for about a year. In he last 6 months, he started having a very hard time breathing...

I am looking for information/advice for my dad who was has had PMR and GCA for a...

alward

•8 years ago

14 Replies

pneumococcal vaccine

Hi, I am looking for some advice. I have had PMR for six years . Am currently taking 7.1/2 dose of Prednisolone, plus Adcal, Amlopdipine 10 mg, and 20 mg...

Hi, I am looking for some advice. I have had PMR for six years . Am currently ta...

Threeyearson

•8 years ago

5 Replies

I have hurt my back

Hi I have hurt my back gardening ! on Saturday i have taken strong pain killers and i am still stiff and very sore. I am on 5 ml of pred (started 20 ml...

Hi I have hurt my back gardening ! on Saturday i have taken strong pain killer...

Kay60

•8 years ago

8 Replies

Too young for PMR

Just seen the rheumatologist Dr Cardy at Worcester Royal for the first time since my GP diagnosed PMR. She believes I am too young to have the condition and...

Just seen the rheumatologist Dr Cardy at Worcester Royal for the first time sinc...

Jenlouh

•8 years ago

10 Replies

Is physical therapy doing more harm than good?

I value the insight of this group and would be interested to know what the opinions of the group might be. I have been on 13 mgs of pred for the past two...

I value the insight of this group and would be interested to know what the opini...

bunnymom

•8 years ago

25 Replies

SWOLLEN FEET WITH PREDNISOLONE

Been on 15mg pred since March 2016 and now on 14mg. My feet have swollen up and the Dr says this is a side effect of the pred. What can I do to help my feet...

Been on 15mg pred since March 2016 and now on 14mg. My feet have swollen up and ...

CarrieP

•8 years ago

7 Replies

How do I recognize a flare?

i hope people don't see my name and say "oh no, here comes that whiny woman from the States!" I've had a rough few days. Thurs went to a funeral and was really...

i hope people don't see my name and say "oh no, here comes that whiny woman from...

Zacsmimi

•8 years ago

9 Replies

ASDA ESTOVER PLYMOUTH GREEN TOKEN APPEAL

Are you living in or around the Plymouth area. Asda have a green token charity bin where 3 charities go up against each other with people who shop there are...

Are you living in or around the Plymouth area. Asda have a green token charity b...

Hidden

•8 years ago

3 Replies

Help in describing PMR to family.

Hello everyone. I wonder if anyone could help me ? I need to find a paper to give to my lovely family so they can read exactly what it is like to have pmr ....

Hello everyone. I wonder if anyone could help me ? I need to find a paper to giv...

Emilytom52

•8 years ago

25 Replies

Hooray for the Internet!

Thanks for creating this site and to all you contributors 😃. It's been good reading all the questions and comments and am now waiting for the highly...

Thanks for creating this site and to all you contributors 😃. It's been good re...

Hidden

•8 years ago

4 Replies

Isn't the steroid supposed to prevent a flare?

I started out on 40 mg. of prednisone for a week. Was on bedrest for 3 weeks. Saw minimal changes from many symptoms, then my doc spoke with rheumy and they...

I started out on 40 mg. of prednisone for a week. Was on bedrest for 3 weeks. Sa...

Zacsmimi

•8 years ago

10 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2016

AN UPDATE ON MY GCA REDUCTION JOURNEY & NO RETURN OF MPS

Plymouth Devon & Cornwall PMR/GCA meet up 15th June 10.30

GCA flare up

Eye problem

Backtracking to see if old symptoms were beginning of PMR...

Prominent Veins in Arms

Eye Disturbances

Pred..... Gastritis and Mouth Sores?

PMR/GCA – Personality Types, the Journey of Change, and Coping Strategies

Pip text messages PMR

I may have forgotten to take my preds today!!! Help!!

Listen to the doctor!!!

I'm new here

PMR/Carpel-tunnel update

Fatigue? What's happening ?

Non related spouse has PMR? Anyone else?

Tapering: mixed queries

Flare?

Oral thrush

PMR/GCA and now Pulmonary Fibrosis

pneumococcal vaccine

I have hurt my back

Too young for PMR

Is physical therapy doing more harm than good?

SWOLLEN FEET WITH PREDNISOLONE

How do I recognize a flare?

ASDA ESTOVER PLYMOUTH GREEN TOKEN APPEAL

Help in describing PMR to family.

Hooray for the Internet!

Isn't the steroid supposed to prevent a flare?

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