2 weeks ago I reduced to 7.5 mg and, to date, haven’t experienced any withdrawal symptoms or side effects., so may well venture down to 7 this weekend. I’ve been taking 2.5 ng at midnight (we retire late) and 5 mg at 9 am. I’ve been splitting in this ratio for a couple of months and it’s worked much better, for me, than taking it in one morning dose.
My wonderful Doctor – having been off sick since September 2015) came back last month and got me onto a NHS programme at a private Physio Clinic – in an attempt to get me walking properly again. So far I’ve had two sessions; been given exercises to do three times a day, and introduced to Kinesiology Tape – brilliant stuff. I faithfully do the exercises at 8 am – 4 pm and midnight and, despite still having the belly fat and Dowagers hump (OK – Buffalo Hump), am standing much straighter and walking further. The pain in my back (from attempting to walk) is gradually easing, and I’m expecting that (just as the MPS eventually did) it will go completely.
The main exercise takes just a few minutes but is proving very effective. It consists of lying my my stomach on hard surface (the floor !) with arms down by my side. Then lifting my legs up alternately 20 times each. I found this difficult to begin with as my spine cracked so many times while getting into ’The Position’ that I worried about the ‘cracking’. Then I discovered that it’s a good thing to do and have even devised a spine-cracking exercise that I can do standing up as well. Now, 3 weeks down the line, the cracking is easing, as my spine straightens, and the leg lifting is now easily accomplished. I did find it hard to begin with as the backward leg lifting isn’t an exercise I’ve done before, and seemed opposite top anything I had previously attempted. In fact I could hardly get my legs even an inch off the floor to start with; but can now do it with ease.
Since my last post I decided to take nothing but the steroids – so not even any Cod Liver Oil. The result is that I have felt so much more like my old self. I know that the steroids have been my saviour from blindness, but they are also the necessary evil. Hopefully I will continue to reduce Preds smoothly, and without flaring. Apart from my trunk fat I am the same size as when all this began (May 4th 2015) – due to sticking to the most carefully controlled diet that I have ever been on. I have even learned to like Lettuce – which my family think is hilarious as I spent my life saying that ‘had I been meant to eat raw greens then I’d have been born with long ears and a talent for hopping’ !!
Apologies if this appears twice - it was 'grabbed 'and vanished before I could finish it.