Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,336 members • 38,101 posts

All posts for June 2016

SOLD THE WRONG WHEELCHAIR (2)

Thanks for everyone's advice. I emailed head office being very polite, trying not to waffle, just stating the facts. I received a call within hours from the...

Thanks for everyone's advice. I emailed head office being very polite, trying no...

siestasue

•8 years ago

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Methotrexate

I have had pmr for 7 years and been treated on pred all that time. I have been still struggling so this week my Consultant suggested I try methotrexate, which...

I have had pmr for 7 years and been treated on pred all that time. I have been s...

Pred60lady

•8 years ago

4 Replies

Adrenal Test

I am due to have a "short Synacthen" test on the 7th. July, I understand that it will just be an infusion then a blood test, and then I'm free to go, which...

I am due to have a "short Synacthen" test on the 7th. July, I understand tha...

bowler

•8 years ago

3 Replies

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Reducing Prednisolone to reduce side effects?

Hi I was diagnosed with PMR March 2016 (male 57) and started on 30mg preds - the effect was almost magical. The pain (neck, all around my shoulders, hands and...

Hi I was diagnosed with PMR March 2016 (male 57) and started on 30mg preds - the...

Chespoll

•8 years ago

21 Replies

Pain.

How do you cope with the pain? Sometimes I can't get out of the chair and bend down without being in deep pain, it hurts so much it makes me cry. Nothing takes...

How do you cope with the pain? Sometimes I can't get out of the chair and bend d...

Zellamze

•8 years ago

4 Replies

Pain.... MRI scan

Having a really bad flare up, my hips hurt so much and shooting pains down my legs. My shoulders hurt too and I feel exhausted by the pain was on 5mcg after...

Having a really bad flare up, my hips hurt so much and shooting pains down my le...

Zellamze

•8 years ago

6 Replies

Hopefully pred free after 3 .5 years.

Saw rheumy yesterday and he is taking me off pred after getting down to 6mg for 4 mth.I have addisons aswell as gca pmr.My hydrocortisone had been stopped for...

Saw rheumy yesterday and he is taking me off pred after getting down to 6mg for ...

whitleybayfc

•8 years ago

5 Replies

Not understanding

I was told by kidney unit in November 2015 that I had pmr and they apologised that it hadn't been picked up before Was given a high dose of steroids and it...

I was told by kidney unit in November 2015 that I had pmr and they apologised th...

Rusty8

•8 years ago

6 Replies

Needing advice

I have GCA and was doing well, reducing from 60 to 45 Pred. The rheumy doubled my Azatroprine (Pred sparing) and I don't know if it is the reason why but I got...

I have GCA and was doing well, reducing from 60 to 45 Pred. The rheumy doubled m...

christine2715

•8 years ago

6 Replies

What to do about my rheumatologist?

Hi everyone, I'm new to health unlocked and hope you guys can help. I've had the symptoms for a year and a half now but I'm going crazy trying to convince my...

Hi everyone, I'm new to health unlocked and hope you guys can help. I've had th...

Fran2young

•8 years ago

26 Replies

Vitamins and supplements while on Prednisolone?

I take both - basic vitamin/supplement package, omega 3, collagen, and calcium* (*taken separately from the pred). I'm on 10-12 mg of Prednilosone currently....

I take both - basic vitamin/supplement package, omega 3, collagen, and calcium* ...

Zacsmimi

•8 years ago

6 Replies

Progress of patsy 69

HI, thanks to all who suggested the Kate Gilbert book, so sensible. Just finished it and feel that I have taken the second step in the learning curve ,the...

HI, thanks to all who suggested the Kate Gilbert book, so sensible. Just finish...

patsy69

•8 years ago

9 Replies

Bruising

I know that bruising occurs with pred (now on 6.5mg) and with methotrexate which I began 8 weeks ago. By the way I have had pmr for two years and it is only...

I know that bruising occurs with pred (now on 6.5mg) and with methotrexate which...

Pat9442

•8 years ago

4 Replies

Could I have fibromyalgia as well as PMR/GCA

Hi All Sorry for another post - Diagnosed with PMR/GCA last June, I have had 3 flares and each time my dose has been increased, resolved the temple pain and...

Hi All Sorry for another post - Diagnosed with PMR/GCA last June, I have had 3 ...

lesley2015

•8 years ago

23 Replies

Phasing down

I have been on prednisolone since January 2015. The Doctor took a blood test in the December (2014) and I got the result in the January. Due to a...

I have been on prednisolone since January 2015. The Doctor took a blood test in ...

alfredbrian

•8 years ago

5 Replies

I am increasing my dose,

Thank you all in advance for the marvelous answers you will give me. I realized today that I keep thinking that the soreness in my rib cage will go away on...

Thank you all in advance for the marvelous answers you will give me. I realized ...

bunnymom

•8 years ago

10 Replies

Family, parents don't understand my diagnosis

I am 50 y.o mother of 3. I have a 15 you daughter at home. The others are grown, have grandchildren. My parents are 76 move around like crazy and since I have...

I am 50 y.o mother of 3. I have a 15 you daughter at home. The others are grown,...

alexamarie

•8 years ago

20 Replies

Thank you, Thank you

I posted yesterday "confused and frustrated". Thanks to everyone who replied! I know there is no easy answer, but just knowing I am not alone does help...

I posted yesterday "confused and frustrated". Thanks to everyone who replied! I ...

mo3go7

•8 years ago

9 Replies

Feeling awful

I have had PMR for 5 years so should know the score but at the moment feel awful. I am currently reducing down from 6mg to 5and a half after being on 6 for the...

I have had PMR for 5 years so should know the score but at the moment feel awful...

kingharold11

•8 years ago

8 Replies

PMR....

I've been on steroids now for three months starting with 15mg. I'm now down to 5mg but unfortunately I've started to get massive pain in my hips and...

I've been on steroids now for three months starting with 15mg. I'm now down to 5...

Zellamze

•8 years ago

9 Replies

palpitations

Hi has anyone noticed an increase in palpitations with pred?

withington1961

•8 years ago

9 Replies

Steroid advice please.

Good morning all you nice people. I am now in my 5th week since my PMR diagnosis. I have been on 10 mlg Pred, which my rumeitoligist has advised me to take at...

Good morning all you nice people. I am now in my 5th week since my PMR diagnosi...

birdwatcher

•8 years ago

19 Replies

Heat Intolerance

Hi Everyone, In you posts, I have not picked up on anyone linking their PMR with a new found intolerance to higher air temperatures. My wife's onset of...

Hi Everyone, In you posts, I have not picked up on anyone linking their PMR with...

binz

•8 years ago

15 Replies

Confused & frustrated!

I wrote a post on here and had one reply, so obviously I'm not doing something right. I'm so upset right now I thought I would give it one more shot for advice...

I wrote a post on here and had one reply, so obviously I'm not doing something r...

mo3go7

•8 years ago

37 Replies

Walking again

After 2 and a half months since I fractured my tibia and fibula above the left ankle, I am walking again, slowly but surely. I still have a long ways to go...

After 2 and a half months since I fractured my tibia and fibula above the left a...

Joyful13

•8 years ago

8 Replies

PMR&GCA uk Support Group Video.

Follow the link https://youtu.be/_DQAgXzp8jc<https://youtu.be/_DQAgXzp8jc>

jinasc

•8 years ago

2 Replies

Help re prednisolne

Hi I am new, diagnosed with PMR at end of March 2016 following 4 weeks of stiffness and pain in my neck, shoulder, both arms hands and legs above my knees....

Hi I am new, diagnosed with PMR at end of March 2016 following 4 weeks of stif...

Chespoll

•8 years ago

12 Replies

Question

Does physio or massage of any sort help PMR?

Patmar

•8 years ago

26 Replies

Prednisolone and insomnia

Hello, I've just joined this site. I've been on prednisolone following a diagnosis of polymyalgia in May. The daily dosage is 12.5mg. I've had trouble sleeping...

Hello, I've just joined this site. I've been on prednisolone following a diagnos...

trebor65

•8 years ago

31 Replies

I am rarely in pain...

For which I am SO grateful. I thought that the steroids would just keep the pain at bay but after reading so much I realize that few people have been as...

For which I am SO grateful. I thought that the steroids would just keep the pain...

Zacsmimi

•8 years ago

6 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2016

SOLD THE WRONG WHEELCHAIR (2)

Methotrexate

Adrenal Test

Reducing Prednisolone to reduce side effects?

Pain.

Pain.... MRI scan

Hopefully pred free after 3 .5 years.

Not understanding

Needing advice

What to do about my rheumatologist?

Vitamins and supplements while on Prednisolone?

Progress of patsy 69

Bruising

Could I have fibromyalgia as well as PMR/GCA

Phasing down

I am increasing my dose,

Family, parents don't understand my diagnosis

Thank you, Thank you

Feeling awful

PMR....

palpitations

Steroid advice please.

Heat Intolerance

Confused & frustrated!

Walking again

PMR&GCA uk Support Group Video.

Help re prednisolne

Question

Prednisolone and insomnia

I am rarely in pain...

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