Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,267 members • 37,933 posts

All posts for June 2016

Zoledronic acid

I haven't posted on here since last year, when my mum was diagnosed with GCA. Since then it's been a stressful journey for her, with little support from...

I haven't posted on here since last year, when my mum was diagnosed with GCA. Si...

JsDaughter

•8 years ago

19 Replies

Is dose unusually high?

I have been having rib/torso pain like someone was squeezing me. Dr increased to 20 pred. After 5 days went up 2 more and is now under control. If I do too...

I have been having rib/torso pain like someone was squeezing me. Dr increased to...

bunnymom

•8 years ago

7 Replies

Is it really pmr?

I have not been in touch for sometime as have been so unwell. My symptoms increased and health deteriorated end of last Year to early this year until I ended...

I have not been in touch for sometime as have been so unwell. My symptoms increa...

35bump

•8 years ago

5 Replies

Want to take advantage of all our features? Just log in!

Starting again after a flare up.

Went to see my consultant last night and we talked about my flare up as my GP told me to reduce far too quickly as I had a bad reaction at firsts to the...

Went to see my consultant last night and we talked about my flare up as my GP to...

Zellamze

•8 years ago

4 Replies

When to take the tablets

I've only recently discovered this site and have now learned a great deal about PMR. I wish I'd found it when I was first diagnosed in March. My question is,...

I've only recently discovered this site and have now learned a great deal about ...

slewis

•8 years ago

11 Replies

Polymyglia reumatoid arthritis

I was diagnosed with pmr 2 months ago, severe pains from neck down to ankles. I was put on 15mg prednisone and after 4weeks, the pain completely cleared,...

I was diagnosed with pmr 2 months ago, severe pains from neck down to ankles. I ...

Raptorabz

•8 years ago

49 Replies

WELSH NEWBIE

diagnosed this year, struggling to come to terms with slowing down and listening to my body, hate taking meds

diagnosed this year, struggling to come to terms with slowing down and listening...

ReesRachel00

•8 years ago

8 Replies

Alternative treatment - approaching home stretch?

So this past month has been a bit up and down, but mostly up. I started going for light therapy once a week. At the same time I kept prodding away at getting...

So this past month has been a bit up and down, but mostly up. I started going f...

HeronNS

•8 years ago

4 Replies

Sudden energy boost

Hi All , just a thought , I struggled to reduce from 7mg , tried 2 or 3 times just to reduce half a Mg . now I have finally got there I seem to be full of...

Hi All , just a thought , I struggled to reduce from 7mg , tried 2 or 3 times ju...

Gaz227

•8 years ago

14 Replies

Need a good rheumatologist please

Was diagnosed with PMR in April 2015 after 4 months of terrible pain. I was unable to get out of bed as I was in severe pain. I started on 15mgs of pred and...

Was diagnosed with PMR in April 2015 after 4 months of terrible pain. I was unab...

Patricia10

•8 years ago

5 Replies

Pain in toes.

Good morning. Wonder if anyone can help . I'm sure I remember reading a post from someone who complained of sharp pains in their toes at night ! ( or did I...

Good morning. Wonder if anyone can help . I'm sure I remember reading a post fro...

Emilytom52

•8 years ago

9 Replies

Coping with Temporal arteritis

Hi I am writing this for my wife looking for some support or advice. Joyce lost her sight about 3 months ago and was diagnosed with Temporal arteritis in...

Hi I am writing this for my wife looking for some support or advice. Joyce lost...

mac66

•8 years ago

6 Replies

Cymbalta (duloxetine)

I was given this medication 12 months ago by a Neurologist for Peripheral Neuropathy? However, since reducing my Pred by 1 mg (now on 6 mg) the symptoms of...

I was given this medication 12 months ago by a Neurologist for Peripheral Neurop...

hwigston

•8 years ago

3 Replies

Thankyou all.

Thankyou all so much for your support and words of wisdom. I'm having a much better day emotion wise. I am in quite a lot of pain and feeling much stiffer...

Thankyou all so much for your support and words of wisdom. I'm having a much bet...

Jenlouh

•8 years ago

3 Replies

Jaw pain

hi everyone, I need your wisdom again. Last week I saw my GP as I had what I thought might be a recurrence of oral thrush, symptoms were sore throat,...

hi everyone, I need your wisdom again. Last week I saw my GP as I had what I t...

Suetum

•8 years ago

4 Replies

A coffee

Hi Is there anyone in the farnham area who would like a coffee and a catch up to talk about our pmr .that sounds so boring maybe just talk about other things...

Hi Is there anyone in the farnham area who would like a coffee and a catch up t...

Hilmae

•8 years ago

30 Replies

White cell count

My latest bloods say my differential white cell count is abnormal but stable. The lymphocyte count is down and so is the monocytes. My ESR is better at 34 but...

My latest bloods say my differential white cell count is abnormal but stable. Th...

christine2715

•8 years ago

5 Replies

research-on-use-of-online-communities-for-support-with-long-term-health-conditions

I thought members of the forum living in Hampshire, Dorset and Wiltshire might be interested in this:...

I thought members of the forum living in Hampshire, Dorset and Wiltshire might b...

PMRpro

Ambassador•8 years ago

Be the first to reply

Not good at the moment

I've got to post how I'm feeling because I'm finding it hard to cope. After the rheumatologist telling me the GP was wrong about my PMR diagnosis as I am only...

I've got to post how I'm feeling because I'm finding it hard to cope. After the ...

Jenlouh

•8 years ago

19 Replies

Coping with PMR & fatigue

I am 59 years old and was diagnosed with PMR 4 1/2 years ago. My pain started in my lower legs. After biopsies and other tests, the Dr.s only came up with...

I am 59 years old and was diagnosed with PMR 4 1/2 years ago. My pain started i...

alice58

•8 years ago

16 Replies

Looking for suffers in Plymouth

Would like to know if there are any suffers in Plymouth who would like a cupa and a talk about there pmr thanks

Would like to know if there are any suffers in Plymouth who would like a cupa an...

Rusty8

•8 years ago

1 Reply

Different meds

My GP prescribed Gabapentin since he feels I don't have PMR due to my blood work not being high enough, according to him the symptoms and reaction to...

My GP prescribed Gabapentin since he feels I don't have PMR due to my blood work...

mo3go7

•8 years ago

6 Replies

New diagnosis

Hi Just coming to terms with my diagnosis and after a miserable time on 15mg pred have come off altogether . How many people manage this condition without...

Hi Just coming to terms with my diagnosis and after a miserable time on 15mg pr...

Hilmae

•8 years ago

22 Replies

No daily digests

I seem to have dropped off the daily digest list; have received nothing for three days. I've done what's recommended on the site, checking my e-mail address...

I seem to have dropped off the daily digest list; have received nothing for thre...

maria40

•8 years ago

7 Replies

Exercise on Pred.

I was told to do exercise to help my PMR and got told to listen to my body etc. I walk my dog 40/60 mins a day everyday anyway but have started riding my bike....

I was told to do exercise to help my PMR and got told to listen to my body etc. ...

Zellamze

•8 years ago

21 Replies

Advice needed please

Good morning I have PMR/GCA diagnosed August 2015. Have had bone scan which came out as very good. Rheumatologist said on Friday markers"excellent". But I do...

Good morning I have PMR/GCA diagnosed August 2015. Have had bone scan which came...

Deeroy2015

•8 years ago

15 Replies

Reducing prednisolone

I have been on prednisolone for about 6 weeks and when I try and cut down from 15mg to 12and half I wake up in the middle of the night all sore again so back...

I have been on prednisolone for about 6 weeks and when I try and cut down from 1...

Mistyscot

•8 years ago

7 Replies

PMR and Finitro

Hi all, has anybody tried a product called Finitro, I get regular messages advertising it in facebook. I am seventy three and was diagnosed pmr seven years ago...

Hi all, has anybody tried a product called Finitro, I get regular messages adver...

haymog

•8 years ago

1 Reply

Pred and Alendronic Acid

I have just been diagnosed with Osteoporosis. I am on 9mg Pred for PMR, reducing 1mg every two weeks. Have now been prescribed Alendronic Acid. Have just...

I have just been diagnosed with Osteoporosis. I am on 9mg Pred for PMR, reducin...

Mintymow

•8 years ago

2 Replies

Intro - new to this excellent site

Hi Everyone, Intro time. 58yo male, living in Australia (Sydney) and 'contracted' (or whatever) PMR about mid May following a shoulder operation in February...

Hi Everyone, Intro time. 58yo male, living in Australia (Sydney) and 'contracted...

PiersC

•8 years ago

14 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2016

Zoledronic acid

Is dose unusually high?

Is it really pmr?

Starting again after a flare up.

When to take the tablets

Polymyglia reumatoid arthritis

WELSH NEWBIE

Alternative treatment - approaching home stretch?

Sudden energy boost

Need a good rheumatologist please

Pain in toes.

Coping with Temporal arteritis

Cymbalta (duloxetine)

Thankyou all.

Jaw pain

A coffee

White cell count

research-on-use-of-online-communities-for-support-with-long-term-health-conditions

Not good at the moment

Coping with PMR & fatigue

Looking for suffers in Plymouth

Different meds

New diagnosis

No daily digests

Exercise on Pred.

Advice needed please

Reducing prednisolone

PMR and Finitro

Pred and Alendronic Acid

Intro - new to this excellent site

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive