I was diagnosed GCA 2 years ago, I started on 60mg pred and am now down to 12. I 've been through many of the ups and downs that I have read about on this forum, it's certainly a challenging illness!
Does anyone else still get really bad headaches? It's the one aspect that I find just so debillitating. I get them randomly, i.e, every day for a week then none for 2 weeks etc. I've kept a diary to check if there may be a cause that I've overlooked but there's nothing,they are random. I can cope with all the aches and pains etc but the headaches really get me down,they're so painful and after I'm exhausted.