Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,269 members • 37,944 posts

All posts for March 2014

Hi I have just found this site. I have been suffering with constant severe headaches for the past 9weeks, around right side of temple and

spreads to same side of head and sits there all day. I get really sore back neck and shoulder pain, ( i thought it was my pillows so went out and spent...

spreads to same side of head and sits there all day. I get really sore back nec...

Jan1961

•10 years ago

20 Replies

Azathioprine

Has anyone been on Azathioprine ? and any bad side effects ?

bowler

•10 years ago

36 Replies

fatigue

I have got rid of the sinus and stomach problem that I have had (see below) however I am left with overwhelming fatigue. I am on 5mg pred a day which is what...

I have got rid of the sinus and stomach problem that I have had (see below) howe...

kingharold11

•10 years ago

13 Replies

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TVT

Sorry, this is not directly related to PMR, but I wonder if anybody has had the TVT procedure done for stress incontinence? Some of the posts on Mumsnet are...

Sorry, this is not directly related to PMR, but I wonder if anybody has had the ...

MoiraCT

•10 years ago

9 Replies

Is it possible to buy the book about PMR and GCA in paperback yet? I've forgotten the exact title, but it was mentioned on here recently!

heli13

•10 years ago

4 Replies

Hi does anyone know if prednisolone causes gallbladder problems? I've only been on them for three weeks and now having pain in top

of right rib cage. Thanks Sue

Suzyself

•10 years ago

3 Replies

Tiredness

Had my GCA diagnosed just over two years ago. Still struggling with reducing the steroids and recently when I dropped from 8mg to 7mg I had a terrible flare...

Had my GCA diagnosed just over two years ago. Still struggling with reducing the...

Narducci

•10 years ago

10 Replies

Hi, I saw my rheumatologist yesterday and she wants me to drop from 37.5 mg preds down to 35 for a week, then down to 30mg for the next

week. This seems to go against everything I've been told about reducing steroids! I think shes concerned as I've been on high doses for 6 months. This is...

week. This seems to go against everything I've been told about reducing steroids...

heli13

•10 years ago

8 Replies

Shoulder blade pain

My last steroid drop was 3 weeks ago. For the past week I have had severe pain in my right shoulder blade. Nothing will make it go away except resting in a...

My last steroid drop was 3 weeks ago. For the past week I have had severe pain i...

Badgergirl

•10 years ago

48 Replies

First Anniversary

This is a very important date for me as it's the anniversary of my 5th knee operation last year. Booked unfit for duty ... met a new friend Polymyalgia...

This is a very important date for me as it's the anniversary of my 5th knee oper...

Skinnyjonny

•10 years ago

9 Replies

Burning Thigh that some of us get, with GCA and PMR, or meralgia paresthetica

Hi, I was newly diagnosed with GCA in May, 2012. I was earlier diagnosed with "burning thigh" or meralgia paresthetica and had a nerve release in 2007. This...

Hi, I was newly diagnosed with GCA in May, 2012. I was earlier diagnosed with "...

Whittlesey

•10 years ago

9 Replies

Got PMR and GCA and on 40mg of Preds, reducing slowly originally from 60mg. Already got a mild cataract since been on preds, now been told

I have very pressures in my eyes which is probably glaucoma. They are sending me straight away, tomorrow, to eye doctor at the hospital. Has anyone else on...

I have very pressures in my eyes which is probably glaucoma. They are sending me...

heli13

•10 years ago

7 Replies

Advice Please

Can somone please tell me if it is normal to have a constant headache? I mean really constant? For weeks now its just always there. Some days worse than...

Can somone please tell me if it is normal to have a constant headache? I mean re...

Jcqln1505

•10 years ago

12 Replies

Our first ever Southwest area support meeting please coma along and support us. If enough support we could change area for other meetings

Our first ever Southwest area support meeting please coma along and support us. If enough support we could change the area for other meetings. DEVON &...

Our first ever Southwest area support meeting please coma along and support us....

Hidden

•10 years ago

5 Replies

Can prednisone cause emotional side effects?

Since my diagnosis of PMR in Sept 2013, I've tapered from 20 mg prednisone to 7.5 mg. in that period of time, I've experienced two emotional "meltdowns", and...

Since my diagnosis of PMR in Sept 2013, I've tapered from 20 mg prednisone to 7....

1Purplecrow

•10 years ago

20 Replies

Still in some pain having had a flare- when is it safe to drop back down to a maintenance level of Pred. ?

The flare started nearly 2 weeks ago when I was on 8mgs. and a week ago I went up from 8mgs to 9 and then to 10 which is a level that I have been good on...

The flare started nearly 2 weeks ago when I was on 8mgs. and a week ago I went u...

suzy1959

•10 years ago

23 Replies

has anyone been on cellcept

hi everyone saw doctor at hospital yesterday he has started me on a new tablet took me of azathioprine been on them for two years. Seen a kidney doctor he put...

hi everyone saw doctor at hospital yesterday he has started me on a new tablet t...

grace1

•10 years ago

6 Replies

Crumbling teeth

Last week, I had to have two crumbling teeth filled at great expense which served me right for making and eating an exceedingly gooey batch of flapjacks. This...

Last week, I had to have two crumbling teeth filled at great expense which serve...

Annodomini

•10 years ago

3 Replies

PMRGCAUK SUPPORT GROUP, PETERBOROUGH ANNUAL GENERAL MEETING

The AGM of the PMRGCAUK Support Group - Peterborough will be held on 30 April 2014 at Prestons Clinic, 29 Alexandra Road, Peterborough PE1 3DE from 2-00pm -...

The AGM of the PMRGCAUK Support Group - Peterborough will be held on 30 April 20...

Hidden

•10 years ago

Be the first to reply

Ive pmr gca for 9 mth still on pred and methotrexate.No sign of improvement still fatigued.

Ive been finally pensioned off after nearly a year off.Its a weight off our minds ive been awarded tier 1 of lgps which is good in a negative situation...

Ive been finally pensioned off after nearly a year off.Its a weight off our mind...

mickt

•10 years ago

2 Replies

Here we go again another flair

Not doing very well with this latest PMR flair up, what is baffling me is that this started at 10 mg of prednisolone (It took nine months to get to 10mg from...

Not doing very well with this latest PMR flair up, what is baffling me is that...

Classicmike

•10 years ago

8 Replies

Good evening can i pay any subscriptions at the same time i pay for Kates BOOK?

daveD

•10 years ago

1 Reply

Ostopenia

I have had PMR for 3 yrs +. Just had bone scan, I have been told I am Ostopenia in the bottom of my spine and hip. I have been on Pred for 2yrs, now taking...

I have had PMR for 3 yrs +. Just had bone scan, I have been told I am Ostopenia ...

Anna21

•10 years ago

14 Replies

Why we need to share experiences with PMR/GCA

Hi Everyone Especially PMRpro; Merk & Lyndyloo2 Fellow Sufferers--It is good to be able to share experiences on our journey through PMR/GCA and learn from...

Hi Everyone Especially PMRpro; Merk & Lyndyloo2 Fellow Sufferers--It is good ...

violetsnowdrop

•10 years ago

8 Replies

Morning. I've had pmr since April 2013. Just as my 33 year old daughter had kidney cancer. So very stressful time.

Started on 20mg pred. Reduced to 8mg by November. Pain returned. Struggled walking. My excellent gp sent my to rheumatologist, who put pred back to 15mg,...

Started on 20mg pred. Reduced to 8mg by November. Pain returned. Struggled walki...

annihami

•10 years ago

13 Replies

PMR Patient wins Pets Therapy award at Crufts today.

Ruth Boyes has PMR and has still managed to continue with her and husbands work with PAT Dogs. Ruth is a member of PMR GCA Northeast Support and they brought...

Ruth Boyes has PMR and has still managed to continue with her and husbands work ...

jinasc

•10 years ago

1 Reply

Not PMR

I went to see my rhuemy last week , feeling dreadful and barely walking with two sticks. He listened while I told him i had pain in my shoulders hips buttocks...

I went to see my rhuemy last week , feeling dreadful and barely walking with tw...

cynbil

•10 years ago

3 Replies

Re- never be without Pred.

I posted on here several days ago regarding a new GP in my surgery who wouldn't prescribe me extra Pred for a flare of GCA/PMR, and said "I shouldn't be...

I posted on here several days ago regarding a new GP in my surgery who wouldn't ...

bowler

•10 years ago

4 Replies

Hi I'm struggling to reduce down from 40mg prednisolone as my GCA symptoms keep coming back.

I'm now trying every other day for a fortnight having 37.5 mg, then 40mg the day after. Does anyone have any advice? Thanks, Helen

I'm now trying every other day for a fortnight having 37.5 mg, then 40mg the day...

heli13

•10 years ago

12 Replies

Good evening folks. any news on KATE'S Book.?

daveD

•10 years ago

12 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2014

Hi I have just found this site. I have been suffering with constant severe headaches for the past 9weeks, around right side of temple and

Azathioprine

fatigue

TVT

Is it possible to buy the book about PMR and GCA in paperback yet? I've forgotten the exact title, but it was mentioned on here recently!

Hi does anyone know if prednisolone causes gallbladder problems? I've only been on them for three weeks and now having pain in top

Tiredness

Hi, I saw my rheumatologist yesterday and she wants me to drop from 37.5 mg preds down to 35 for a week, then down to 30mg for the next

Shoulder blade pain

First Anniversary

Burning Thigh that some of us get, with GCA and PMR, or meralgia paresthetica

Got PMR and GCA and on 40mg of Preds, reducing slowly originally from 60mg. Already got a mild cataract since been on preds, now been told

Advice Please

Our first ever Southwest area support meeting please coma along and support us. If enough support we could change area for other meetings

Can prednisone cause emotional side effects?

Still in some pain having had a flare- when is it safe to drop back down to a maintenance level of Pred. ?

has anyone been on cellcept

Crumbling teeth

PMRGCAUK SUPPORT GROUP, PETERBOROUGH ANNUAL GENERAL MEETING

Ive pmr gca for 9 mth still on pred and methotrexate.No sign of improvement still fatigued.

Here we go again another flair

Good evening can i pay any subscriptions at the same time i pay for Kates BOOK?

Ostopenia

Why we need to share experiences with PMR/GCA

Morning. I've had pmr since April 2013. Just as my 33 year old daughter had kidney cancer. So very stressful time.

PMR Patient wins Pets Therapy award at Crufts today.

Not PMR

Re- never be without Pred.

Hi I'm struggling to reduce down from 40mg prednisolone as my GCA symptoms keep coming back.

Good evening folks. any news on KATE'S Book.?

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