TVT: Sorry, this is not directly related to PMR... - PMRGCAuk

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TVT

MoiraCT profile image
9 Replies

Sorry, this is not directly related to PMR, but I wonder if anybody has had the TVT procedure done for stress incontinence? Some of the posts on Mumsnet are alarming, but the doctor says it's straightforward.

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MoiraCT profile image
MoiraCT
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9 Replies
ritter profile image
ritter

Hi can you tell me what is TVT have not heard of that before ,ritter Anne

PMRpro profile image
PMRproAmbassador in reply to ritter

Tension-free vaginal tape - to improve stress incontinence.

PMRpro profile image
PMRproAmbassador

Was it TVT that got a bad write up in the Daily Mail the other week? They have run a campaign in the past about it but this is the most recent article I can find:

dailymail.co.uk/health/arti...

There are many things from the DM I simply go "yeah right" at but in this case there does appear to be a bit of fire behind the smoke. One in 20 is the figure quoted for adverse events. I suspect that when it works well it is excellent - unless you are one of the 5% where it goes wrong.

I'd want more than my GP's assurance I think - and see if you get the warnings this article hints at.

Hi MoiraCT,

I live in Scotland and the Daily Record has been running a campaign against vaginal mesh which may be the same kind of thing as the tape.

I agree with PMRpro, usually I find stories in these type of papers alarmist but it would appear that these kind of products can have very bad side effects for some people.

Worth doing some more research, the Consultant Urologist should be able to tell you about known side effects and percentages of patients affected as part of the consent process.

Good luck.

MoiraCT profile image
MoiraCT

Thank you both

The consultant told me he has done 1500 of these operations with no problem. I was at the hospital this afternoon for the pre-op visit, and the doctor there said there is a difference between the tvt tape that will be used to tighten the urethra and the mesh that was/is the bone of contention. Apparently it was larger pieces of mesh used as a sling which caused the problems. I'm going in on Tuesday so fingers crossed. As Eileen says, if you're one of the 5% it's not much comfort to know that most ops go well, but I'm hoping for the best. Moira

PS Although this seemed to be separate from PMR, it was while I had PMR that the coughing/sneezing/laughing problem got worse.

PMRpro profile image
PMRproAmbassador in reply to MoiraCT

I think it is relatively common in PMR to be honest - I know a load of people who've had problems. Several of us have felt that we should have taken out shares in Tena! However - I managed fine with the smallest version and have just got to the stage when I think I will try without :-) I don't think it is separate from PMR - I think some of the effects of PMR manifest years before we get t o the stage of being diagnosed with PMR. I had had identifiable PMR for 5 years pre-diagnosis but looking back some of the problems had been there even longer.

Yes, that's right, mesh caused all sorts of problems because in some patients it hardened. All the very best for Tuesday - where there are problems I imagine the surgeon doing it may have had something to do with it. There is all this fuss about making centres of excellence which I don't understand - if you need a procedure done you want it to be done by someone who does it a few times a week not a couple of times a month and who spends a lot of time looking at that particular bit of anatomy! If he's really done 1500 he knows what he's working with!

ritter profile image
ritter in reply to PMRpro

TVT

ritter profile image
ritter

You know what i think girls i think its the preds they make all mussels go really soft and you have to start doing some sort of excise to get them working again I just look like a ball of flab but on reducing the preds i am starting to take shape again but very slowly I was always a keep fit person but you want to see me now i think someone sneaks in during the night with a bicycle pump,,the preds also weaken our vains but do not know how to make them strong again,,if anyone has any suggestions ? ,,

thanks for explaining TVT,,ritter Anne by the way girls lost my last chicken to day very sad she thought she was one of the dogs the last few months,.xx

PMRpro profile image
PMRproAmbassador in reply to ritter

It isn't just the pred - I had problems after PMR started but long before I was put on pred. I had PMR for 5 years before pred.