Had my GCA diagnosed just over two years ago. Still struggling with reducing the steroids and recently when I dropped from 8mg to 7mg I had a terrible flare up. My head was bursting, my shoulders and neck throbbing and aching, but the thing that really gets me down is my complete lack of energy.
When I wake up in the morning I just want to go back to sleep and some days I just
wish I was tucked up in bed and resting and I have to force myself to get up. I certainly do not want to feel like this.
Does anyone else suffer this acute tiredness? If so, what do you do to try and
Does this ever get better?