Rare Disease Day is this Thursday The theme this year is #lightupforrare check out the website
What is a rare disease? - Rare Disease Day 2024
The PBC Foundation team will be sharing photos on social media from this Thursday. Everyone is encouraged to take photos with lights, glow sticks and send them along with a short narrative of who you are and why you are supporting Rare Disease Day to mo@pbcfoundation.org.uk (with consent from everyone in the photos to share on social media).