Hypereosinofilia with Pbc,ursofalk side effects.

[Alina8004]

Hello !!I have just been diagnosed with PBC,as you can imagine it was a huge surprise considering I have never had health issues before.

Everything started with some gastro problems,mostly bloating and some discomfort in the bowel area.

Blood tests shower increased GGT 160 , hypereosinophilia 2400 ,incresed IGM and finally a positiv AMA M2,the rest were all normal.

IRM and CT didn't show any abnormalities of the liver.

I started taking Ursofalk since 3 weeks,all above decreased to a normal level,but now I feel pain in the liver area,like it's burning, never had any physical discomfort in the liver before.

I wounder if the Ursofalk dose it's too much for my weight. I have 50 kg and 155 cm

3 x 250.

Anyone else experienced burning sensation in the liver from Urso?

Thank you!

[butterflyEi]

Hi Alina8004 sorry to read your post, I am sure it was a surprise, I was the same.

I have occasional discomfort around the liver area, I take a paracetamol and when it is more uncomfortable I use a warm hot water bottle and place it behind me over the liver area.

May I point you in the direction of the PBC Foundation, their web site is very good and they have a help line. I believe that the PBC Foundation can use WhatsApp to speak to you as international telephone calls can be very expensive.

pbcfoundation.org.uk/

[Alina8004 in reply to butterflyEi]

Thank you so much for replying and for the helpful advises.I have also joined pbc foundation.

Wishing you all the best!!