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PBC Foundation

9,391 members • 8,002 posts

All posts for March 2018

Pbc/Aih

Has anybody suffered with orange patches on the skin

janine541

•6 years ago

7 Replies

Worried !

I am new here, haven't got my head around everything yet so I am still at the worried stage, I look forward to interacting with you all in the future

I am new here, haven't got my head around everything yet so I am still at the wo...

WillowW

•6 years ago

29 Replies

Alt elevated

My alt was running around 33 to 40 u/l from jan 2017 to July 2017 then in December it went 59 and now 51.. alp gradually down now average 75 to 80.. my dr is...

My alt was running around 33 to 40 u/l from jan 2017 to July 2017 then in Decemb...

Sachin1234

•6 years ago

17 Replies

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12 week update on Ocaliva - plateau’ed.

Update on me. For reference I was diagnosed with PBC in March 2017. Went on urso which was helping but then plateaued over the summer. Started Ocaliva 11/13,...

Update on me. For reference I was diagnosed with PBC in March 2017. Went on urso...

Ottley3

•6 years ago

12 Replies

Chocolate and Oreo ice cream

I had a chocolate and Oreo Ice cream kind of cluster ice cream ( I haven’t had any for about a year before I got sick) but this killed me it was like a bomb in...

I had a chocolate and Oreo Ice cream kind of cluster ice cream ( I haven’t had a...

3phyraX

•6 years ago

8 Replies

Concerns

After a definite diagnosis 5 weeks ago of pbc and aih consultant started me on proper dose of urso and steroids for aih , within 24 hrs the constant muscle...

After a definite diagnosis 5 weeks ago of pbc and aih consultant started me on p...

Louisethew

•6 years ago

6 Replies

Should I be taking medication to slow down progress?

Hi just had my second appointment with consultant. I was diagnosed in 2017. I was told that my fibroscan showed some early fibrosis and a fatty liver. No...

Hi just had my second appointment with consultant. I was diagnosed in 2017. I ...

Elanie

•6 years ago

13 Replies

Buzzing in my ears at night.

Buzzing in my ears that is worse at night... Does anyone else have this? Is it from the toxins building up during the day and going to your brain?

Buzzing in my ears that is worse at night... Does anyone else have this? Is it f...

AuntDeeDee

•6 years ago

23 Replies

Thyroid

Thyroid test came back all jacked up. I understand Ocaliva can have abnormal effect on levels, so be it. Do those of you on Urso have the same problem? So...

Thyroid test came back all jacked up. I understand Ocaliva can have abnormal eff...

gwillistexas

•6 years ago

38 Replies

Back from Doctors

My numbers are up a little. Do any of you have low sodium count? I asked what does that mean. Oh it could be something serious. Im glad i trust Jesus. They did...

My numbers are up a little. Do any of you have low sodium count? I asked what do...

My-life

•6 years ago

7 Replies

When to test for urso response

Hi. Can anyone tell me when i should be tested to see if i am responding to urso. I have been taking urso for 1 month and have been diagnosed with pbc. I am...

Hi. Can anyone tell me when i should be tested to see if i am responding to urso...

pottery1

•6 years ago

14 Replies

Need some guidance

My Mom has the following labs: Tbili 3.5, ALKP 215, ALT 153, AST 199. AMA negative and ANA negative. Physician told her she might have PBC. He told her to...

My Mom has the following labs: Tbili 3.5, ALKP 215, ALT 153, AST 199. AMA nega...

Jcolvis

•6 years ago

12 Replies

PBC and neuropathy

Hi all 6 months ago I began quite suddenly to have painful pins and needles in my hands and feet, along with some 'mistaken' nerve signals like there was...

Hi all 6 months ago I began quite suddenly to have painful pins and needles in m...

Skypony

•6 years ago

21 Replies

Gallbladder removal

I’ve been sick for two months. Started out gettin dizzy and nauseous. Lost appetite and couldn’t eat for weeks. Had to force myself to eat a little bit was...

I’ve been sick for two months. Started out gettin dizzy and nauseous. Lost appet...

Trish1220

•6 years ago

11 Replies

From USA

To bad we cant get on the Doctors and pin them down. Lol

My-life

•6 years ago

4 Replies

Treatment for autoimmunity?

I know this isn’t the most reputable source but this looks like it’s worth looking into. This article specifically mentions ‘autoimmune liver disease’ as...

I know this isn’t the most reputable source but this looks like it’s worth looki...

Aussie05

•6 years ago

6 Replies

Pins and needles

Does anybody get pins and needles in their legs and feet im on urso and only had this since starting it 4 weeks ago

Does anybody get pins and needles in their legs and feet im on urso and only had...

kingsnorth

•6 years ago

15 Replies

alk phos climbing

I have been on Urso for a year and 5 months on Ocalvia and my Alk Phos is still climbing. Has anyone else experienced this?

I have been on Urso for a year and 5 months on Ocalvia and my Alk Phos is still ...

happy0507

•6 years ago

5 Replies

Liver cleanse

Has anyone on here ever done a liver cleanse and if so did it make you feel better?

Has anyone on here ever done a liver cleanse and if so did it make you feel bett...

happy0507

•6 years ago

13 Replies

Information please

Im asking about strength. I was a tom girl. Now i find my strength is so much less. Pulling weeds hard. My hands are not as strong. My bones are what they said...

Im asking about strength. I was a tom girl. Now i find my strength is so much le...

My-life

•6 years ago

23 Replies

Stage 4 PBC

This question has been asked before, but I'm looking for people who are diagnosed with stage 4 (cirrhosis) or people who can tell how long this stage can...

This question has been asked before, but I'm looking for people who are diagnose...

Suzie38

•6 years ago

18 Replies

PBC and new here.

Hi, I am new here also. I failed the AMA 2 years ago at age 48 1:380 high alt/ast and had some problems with unbearable pain in the upper torso under the...

Hi, I am new here also. I failed the AMA 2 years ago at age 48 1:380 high alt...

Maur22

•6 years ago

23 Replies

Uncertain

Hi I'm new here. I'm 50 years old, went for my annual physical and was told I have elevated liver enzymes. My AST is 52, ALT is 76 and Alkaline Phosphatase...

Hi I'm new here. I'm 50 years old, went for my annual physical and was told I h...

jplitt

•6 years ago

28 Replies

Cold again!!!!

Can I take Night Nurse tablets with Urso, I am tired of repeat colds this winter just paracetemol doesnt do anything, o I thought I would try these.?

Can I take Night Nurse tablets with Urso, I am tired of repeat colds this winter...

Sandie1

•6 years ago

4 Replies

PBC and anti Depressants

I have PBC and my husband was killed in an accident at work last December. I am finding it so hard to cope, we married as teenagers, he was 55 and fit as a...

I have PBC and my husband was killed in an accident at work last December. I am ...

pmpaula

•6 years ago

12 Replies

Large Bruises

Does anyone else bruise super easy? I have large bruises all over me. I may bump my leg ( not even enough for it to hurt), yet I will end up with a large...

Does anyone else bruise super easy? I have large bruises all over me. I may bum...

GhostHunter

•6 years ago

14 Replies

Lower tummy pains with Urso

Hi, i was diagnosed with PBC in December and i am in my 3rd week of taking Urso, 3 x day. For the past 2 weeks i have a bloated tummy which is tender and a...

Hi, i was diagnosed with PBC in December and i am in my 3rd week of taking Urso,...

pottery1

•6 years ago

2 Replies

How often do you get blood work?

I was seeing a Gastrologist now a Hepatologist.How often should I be getting blood work done?Gast. was every 4-5 months.Just started seeing my Hep. in...

I was seeing a Gastrologist now a Hepatologist.How often should I be getting bl...

PBCTracy

•6 years ago

6 Replies

Sad and low after being diagnosed with stage 2 cirhossis

Hi all Have been told I am at stage 2 cirrhosis as have small ascites and varices ...feel suddenly very low and sad and strange about it all..I have had PBC...

Hi all Have been told I am at stage 2 cirrhosis as have small ascites and var...

bobbycat

•6 years ago

13 Replies

What can this be?

For the past 4 years I have had high LFT counts which is controlled by 500mgs of Urso x 2 daily. I am 64 years old and tests for AMA and a biopsy, both 3 years...

For the past 4 years I have had high LFT counts which is controlled by 500mgs of...

KathyFish

•6 years ago

13 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for March 2018

Pbc/Aih

Worried !

Alt elevated

12 week update on Ocaliva - plateau’ed.

Chocolate and Oreo ice cream

Concerns

Should I be taking medication to slow down progress?

Buzzing in my ears at night.

Thyroid

Back from Doctors

When to test for urso response

Need some guidance

PBC and neuropathy

Gallbladder removal

From USA

Treatment for autoimmunity?

Pins and needles

alk phos climbing

Liver cleanse

Information please

Stage 4 PBC

PBC and new here.

Uncertain

Cold again!!!!

PBC and anti Depressants

Large Bruises

Lower tummy pains with Urso

How often do you get blood work?

Sad and low after being diagnosed with stage 2 cirhossis

What can this be?

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