Pins and needles

[kingsnorth]

Does anybody get pins and needles in their legs and feet im on urso and only had this since starting it 4 weeks ago

[iagra]

I have pins and needles in my legs now and then, but, it's not related to urso. It could be a coincidence. I hope it goes away. Many things come and go.

[Jay_l]

Hi. I get pins and needles in my hands and feet. Got it before urso. Think it's a PBC thing not caused by urso. 👍🏻🤗

[Ktltel]

Kingsnorth,

Yep, I get pins and needles in legs and feet. I think it could be a blood sugar thing instead of a PBC thing.

I'm pre-diabetic. In my case I gotta watch carbs and simple sugars.

Stella ❤

[butterflyEi]

I have pins and needles with burning sensation. I have been diagnosed with peripheral neuropathy

[BethRL in reply to butterflyEi]

Hi. I do. Real bad pain a couple times. Going for testing. What is done for peripheral neuropathy?

Coincided at same time I started URso.

[kingsnorth in reply to BethRL]

I havent got a clue what is done for peripheral neuropathy or even how they test for it !!

[butterflyEi in reply to kingsnorth]

Hi kingsnorth

My GP diagnosed the peripheral neuropathy after my explanation of the symptoms. I think if the process of elimination did not work then I would be referred to a specialist for further investigations.

[butterflyEi in reply to BethRL]

Hi BethRL

I am prescribed gabapentine for my diagnosed peripheral neuropathy. I was put on URSO back in 2006 but developed neuropathy a couple of years ago.

[kingsnorth43 in reply to butterflyEi]

How was your peripheral neuropathy diagnosed I think that's what I may have but im going to try some vit B12 first cant stand any more gp visits

[butterflyEi in reply to kingsnorth43]

Hi kingsnorth43

Well I certainly empathize with not wanting any more GP visits, it is all such hard work these days.

I am prescribed vitamin B12 injections because I have been diagnosed by blood tests with Pernicious Anaemia. The doctor said "well over 60 fair haired and blue eyed what else do you expect" - well I could not answer her as she was so dismissive, if I had known I would not be asking!!! hey ho!

When I went to the GP with tingling burning sensation crawling up my legs the slightly older (more experienced) semi retired GP felt the pulse by my ankles listened to my description of symptoms confirmed neuropathy and prescribed gabapentine. When I went back for a repeat prescription I could not get an appointment with the older GP, saw the dismissive one who suggested I try mind over matter, shortly after I managed to get an appointment with the older GP who put the gabapentine on repeat. I still get the burning and tingling sensation in the feet, not so bad in the hands but at least the crawling burning sensation up the legs has all but gone.

I use a vitamin D plus K spray (take enough tablets) and currently use a multi vitamin from Higher Nature, it is without added iron. I am currently looking into a spray that is available from Bodykind which has A D E & K, I just need to see my friend who knows a lot about vitamins. The reason for my search is having watched the PBC.org Ask the Experts Round Table discussion which can be found on You Tube the female doctor talks about these 4 vitamins but it is something not discussed by specialists in the UK and I am not sure if it is something to supplement if the PBC is in an advanced stage. Always so many questions but very few answers. Maybe I should ask the question on here as there are so many knowledgeable fellow sufferers.

Sorry for the long reply - hope it all makes sense if not get back to me and apologies if there is a sound of moan in the reply sometimes it just get a body down

[kingsnorth in reply to butterflyEi]

Thanks im going to get some B12 vits l think l mentioned l have lupus and sjogrens as well as pbc which was diagnosed in Feb by way of biopsy and quite frankly scares me to death!! I live in kent and im 68 in November. Any advice is appreciated. Best wishes

[Bobbiesitzman]

Yes, pens and needles hands and feet. When it is effected my hands if I hit them against something it will shoot sharp pains up my arm. So painful. Doesn't last but a moment, but takes my breath away.

[BethRL]

Hi Ty for replying. Some days better than others.

Crazy I am an active fit individual. PBC a shock although I am considered mild stage 1 by biopsy. Fibroscan was great showing no signs fibrosis in liver.

So now this, which coincided at same.

Tomorrow will request scan for pressure and any other test to check for neuropathy.

I’m 60 in a week, feeling well. But PBC.

Time will tell. Only on URso. Not a big advocate on meds due to side effects.

It has lowered enzymes. Will ck eom again.

Started b12. Only slightly off in #s. ADKE

Important to watch. E was fine. But I started for circulation.

Just walked quite a distance and feel tingling.

All the best to all. Appreciate your response.

[kingsnorth in reply to BethRL]

I go to gym but last week legs were really bad after exercise but l will go aqua class tomorrow. I bought B13 vits today and taken one will carry on with l until my bloods are done in june. I have fibrosis.

[BethRL]

Hi Kingnorth

Keep moving. I know arthritis foundation states doing excercise is better. Otherwise tighten , stiffen up.

B12 and e are supposed to help tingling and circulation.

Feel better.