Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,391 members • 8,002 posts

All posts for October 2017

Anitihistamine

Does anyone know know liver friendly allergy medicine? I'm taking cleartin-d twice a day and just find out it is a liver metabolites..

Does anyone know know liver friendly allergy medicine? I'm taking cleartin-d tw...

Sachin1234

•7 years ago

12 Replies

Keeping Fit

I realise I'm lucky as I read so many posts on here from people who are really suffering. I don't itch and apart from feeling tired and joint pain I'm...

I realise I'm lucky as I read so many posts on here from people who are really s...

Jules-S

•7 years ago

11 Replies

Bouts of nausea

Does anyone else suffer from bouts of nausea and, if so, are they PBC related? For several years I've had periods of nausea lasting a few hours to a couple of...

Does anyone else suffer from bouts of nausea and, if so, are they PBC related? F...

58goose

•7 years ago

16 Replies

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Feeling much better

Hi everyone I have the ERCP Friday one week ago. First day was rough but has been up hill ever since. The abdominal pain has pretty much gone. I’m still...

Hi everyone I have the ERCP Friday one week ago. First day was rough but has be...

Jeanb47

•7 years ago

1 Reply

NEWLY DIAGNOSED

Hi everyone. I have decently been dx with PBC and am looking to find out some guidance on dietary changes that might be beneficial to my liver. As far as I...

Hi everyone. I have decently been dx with PBC and am looking to find out some gu...

zoesteve

•7 years ago

6 Replies

Waking up because of the itching :(

Well it's bow half 4 in the morning and I have been woken up by my arms,legs,stomach and back itching like crazy. At my last appointment at Birmingham I was...

Well it's bow half 4 in the morning and I have been woken up by my arms,legs,sto...

Lilbear89

•7 years ago

8 Replies

Enlarged lymph nodes

Hi, I've had PBC for a long time but was diagnosed 18 months ago. I'm an Urso responder and generally doing okay. I now have an inflamed gall bladder which has...

Hi, I've had PBC for a long time but was diagnosed 18 months ago. I'm an Urso re...

Keep-smiling

•7 years ago

5 Replies

Feeling pretty unhealthy right now

Hi everyone, I was diagnosed with pbc in Jan this year. I’m currently taking 500mg of ursine twice a day. Came as a bit of a shock as I didn’t feel ill but was...

Hi everyone, I was diagnosed with pbc in Jan this year. I’m currently taking 500...

Melani1

•7 years ago

1 Reply

Spirulina

Hi all. I hope life treats you well. Does anyone take a good quality Spirulina powder? If so, do you feel it helps? Thanks!

Hi all. I hope life treats you well. Does anyone take a good quality Spirulina ...

youaremysunshine

•7 years ago

8 Replies

Thank you

Thank you everyone that commented on my post re biopsy , went for pre assessment today spoke to the nurse about my concerns as to why I need it and have...

Thank you everyone that commented on my post re biopsy , went for pre assessment...

Louisethew

•7 years ago

1 Reply

Auction?

Has anyone else had emails about a charity on-line auction for pbc. Seems to be jewelry and art and is run by someone called Charlie Williams. Can't find...

Has anyone else had emails about a charity on-line auction for pbc. Seems to be ...

swinstan

•7 years ago

24 Replies

Oclavia

Well, my GI himself, called me Monday. Got the impression he wasn’t too happy with my questioning dosage. So, he is bringing me in this morning to meet with...

Well, my GI himself, called me Monday. Got the impression he wasn’t too happy wi...

gwillistexas

•7 years ago

30 Replies

I will be having my liver biopsy on 10 of October 2017. But am really scared about it and am also worried about my liver health. Am confuse

Pls can any one Tell me about your experience with this procedure

Alex111

•7 years ago

12 Replies

PBC-URSO NOT EFFECTIVE

Hello every one my mother is suffering from PBC and was taking Urso 250 4 times but it is not effecting her positively, recently her feet is swollen and she...

Hello every one my mother is suffering from PBC and was taking Urso 250 4 times ...

saeedasalma

•7 years ago

7 Replies

Liver specialist

Is there a liver specialist around the Bedfordshire area in the U.K. does anyone know? I see a gastro once a year, only been dx about a year and half, I don’t...

Is there a liver specialist around the Bedfordshire area in the U.K. does anyone...

Yvonnejulie

•7 years ago

2 Replies

Indiana conference

Hi, someone posted the other day a link to the PBC/AIH Indiana conference. I can’t find it and was wondering if someone could repost the link. Thank you!!!

Hi, someone posted the other day a link to the PBC/AIH Indiana conference. I can...

gallatracy

•7 years ago

2 Replies

Liver biopsy

Hi have recently been diagnosed with pbc and prescribed urso ( only 500 mg and I'm a large lady ! ) I am due to have a liver biopsy next week as some other...

Hi have recently been diagnosed with pbc and prescribed urso ( only 500 mg and I...

Louisethew

•7 years ago

67 Replies

Help...Allergic to new carpet and perfume etc, is this part of liver disease?

Hi all We had a new carpet laid over 8 days ago and I am still unable to go into the sitting room which has been aired all the time and vacuumed by my other...

Hi all We had a new carpet laid over 8 days ago and I am still unable to go into...

bobbycat

•7 years ago

3 Replies

Crest syndrome

How do dr dx crest syndrome? What are the real symptoms? I have acid reflux and some times I have dry mouth too.. I take 1 tablet of pentaprazole sodium 40 mg...

How do dr dx crest syndrome? What are the real symptoms? I have acid reflux and ...

Sachin1234

•7 years ago

32 Replies

First visit with liver specialist

I was diagnosed with PBC after blood work and MRI with and without contrast. I was seen by a physician assistant. This Thursday I see the specialist. What...

I was diagnosed with PBC after blood work and MRI with and without contrast. I w...

Leahlee

•7 years ago

3 Replies

Budenofalk

Hello everybody, I recently visited my doctor and seems that things are not going well :( ...she said that my body didn't react very good by Ursofalk and she...

Hello everybody, I recently visited my doctor and seems that things are not goin...

katim

•7 years ago

19 Replies

Not sure!!

I've had terrible fatigue and nausea for 9 months. Have been taking Thyroxine for 25 yrs (am 68 now) and levels are normal . Gp been fantastic and did more and...

I've had terrible fatigue and nausea for 9 months. Have been taking Thyroxine fo...

Joel31

•7 years ago

2 Replies

post transplant issues.

hi 4.5 months post transplant... was really good for first few months but feeling much worse now.... bloods okay but awful tummy troubles... very loose stools...

hi 4.5 months post transplant... was really good for first few months but feelin...

cazer

•7 years ago

21 Replies

Very tired.

Does anyone who is in early stages of PBC feel tired all the time? I have to take a nap every day and go to bed early. I was diagnosed early this year and...

Does anyone who is in early stages of PBC feel tired all the time? I have to t...

Vera70

•7 years ago

19 Replies

Obeticholic Acid, aka OCA or Ocaliva

https://www.pbcfoundation.org.uk/news/latest-news/statement-from-the-medical-advisory-committee-of-pbc-foundation Please see the link above to the statement...

https://www.pbcfoundation.org.uk/news/latest-news/statement-from-the-medical-adv...

PBCRobert

Partner•7 years ago

1 Reply

Not yet diagnosed. Referred to QE Birmingham, for first appointment. Blog Number 1.

Not yet diagnosed. Born 1965. Live in Birmingham UK. Referred to QE based on Low platelet levels, and suspect PBC. First appointment soon. I am very grateful...

Not yet diagnosed. Born 1965. Live in Birmingham UK. Referred to QE based on Low...

JaneinBrum

•7 years ago

5 Replies

2 Year Update PBC

Here's an update on how I am doing with PBC. It has been 2 years since I was diagnosed with PBC. Last year, I had no scarring and my inflammation was...

Here's an update on how I am doing with PBC. It has been 2 years since I was di...

chynablue

•7 years ago

26 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for October 2017

Anitihistamine

Keeping Fit

Bouts of nausea

Feeling much better

NEWLY DIAGNOSED

Waking up because of the itching :(

Enlarged lymph nodes

Feeling pretty unhealthy right now

Spirulina

Thank you

Auction?

Oclavia

I will be having my liver biopsy on 10 of October 2017. But am really scared about it and am also worried about my liver health. Am confuse

PBC-URSO NOT EFFECTIVE

Liver specialist

Indiana conference

Liver biopsy

Help...Allergic to new carpet and perfume etc, is this part of liver disease?

Crest syndrome

First visit with liver specialist

Budenofalk

Not sure!!

post transplant issues.

Very tired.

Obeticholic Acid, aka OCA or Ocaliva

Not yet diagnosed. Referred to QE Birmingham, for first appointment. Blog Number 1.

2 Year Update PBC

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