Posts - PBC Foundation | HealthUnlocked

PBC Foundation

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All posts for September 2017

Keeping warm

Hi. I'm just curious to know, are we pbc sufferers supposed to keep warm? To ward off raynauds. My house is so cold and the boiler is 27 years old. Just...

Hi. I'm just curious to know, are we pbc sufferers supposed to keep warm? To war...

SharonM69

•7 years ago

4 Replies

My Mom diagnosed with PBC just couple of days back.

My Mom she is 61 yrs and she recently got diagnosed with PBC. Doctor said she having this from last 15 yrs approximately. She had water retention issues which...

My Mom she is 61 yrs and she recently got diagnosed with PBC. Doctor said she ha...

VickyVirdi

•7 years ago

11 Replies

Pbc trial😄

I was invited to participate in a Pbc medication trial .fortunately I'm a responder to urso witch I have been taking 1000 mg a day for over a year. The trail...

I was invited to participate in a Pbc medication trial .fortunately I'm a respon...

Lcagar63

•7 years ago

7 Replies

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Biopsy says PBC/AIH overlap

So my Dr called today and said that I do have the PBC/AIH overlap. The biopsy/labs confirmed what she was thinking. Apparently it is that AIH that's...

So my Dr called today and said that I do have the PBC/AIH overlap. The biopsy/l...

IAmTheGlue

•7 years ago

20 Replies

Fibroscan scores

On the lighter side of things, my husband says with the "F" scores, were rated like tornadoes ", 😅 hope everyone has a peaceful night😴

On the lighter side of things, my husband says with the "F" scores, were rated l...

gwillistexas

•7 years ago

3 Replies

Post earthquake

Today I had an appointment with the hepatoligist in Mexico city. I am from guanajuato. Well walking to the hospital Te was a massive earthquake 7.1. And it...

Today I had an appointment with the hepatoligist in Mexico city. I am from guana...

YADILURO

•7 years ago

19 Replies

Fibroscan

Thanks to all those who wished me well. I got my report today. F2, and low end I might add. Dr said mild to moderate scarring. No concerns. Continue monitoring...

Thanks to all those who wished me well. I got my report today. F2, and low end I...

gwillistexas

•7 years ago

10 Replies

Ductopenic Variant anybody?

I seem to be picking up the house phone, it does not ring much and it is always medical stuff. Addenbrookes have had their meeting about me, that even makes me...

I seem to be picking up the house phone, it does not ring much and it is always ...

Jo_Br

•7 years ago

8 Replies

Just had fibroscan

It was so quick even got on the same bus as I came in on. All he said was that I was at 7.0. Does anyone know what this means?

It was so quick even got on the same bus as I came in on. All he said was that I...

SharonM69

•7 years ago

26 Replies

Is "Ultrasound with shear wave elastography" test same as "Fibroscan"?

Hello everyone! I live in the US, WA state. Diagnosed with PBC in August of 2016. I had a liver biopsy done in 9/2016, to establish the baseline. Since then I...

Hello everyone! I live in the US, WA state. Diagnosed with PBC in August of 2016...

iagra

•7 years ago

16 Replies

Its kind of being a little bit pregnant....

In 2009 I returned from Iraq I was crazy itchy. Spent months going back and forth to the doctor, being told to take benadryl etc. etc. then I went to my GI...

In 2009 I returned from Iraq I was crazy itchy. Spent months going back and for...

Cooper6

•7 years ago

4 Replies

Ultrasound Vs Fibroscan

Hello Everyone, Well, it's been almost 1 year since I was diagnosed with PBC. I couldn't tolerate URSO at first, so I actually didn't get started on it...

Hello Everyone, Well, it's been almost 1 year since I was diagnosed with PBC. ...

Ktltel

•7 years ago

26 Replies

Biopsy results

Hello all, I got a call from my GI's office with the results of my liver biopsy. She said it confirmed the diagnosis of PBC, but that she believes I have an...

Hello all, I got a call from my GI's office with the results of my liver biopsy....

IAmTheGlue

•7 years ago

17 Replies

Pins & needles in hands & feet, PBC or peripheral neuropathy?

Hi all I'd thought for a week that the very unpleasant new 'prickling' sensation that I'd developed was PBC itch, but now believe after visit to GP that it's...

Hi all I'd thought for a week that the very unpleasant new 'prickling' sensation...

Skypony

•7 years ago

10 Replies

I'm new here

I was diagnosed with PBC in May this year and my specialist has just told me that I am further along than he thought. This is because he has found that I have...

I was diagnosed with PBC in May this year and my specialist has just told me tha...

richardhayes

•7 years ago

11 Replies

Hotel California

I want all mailings to cease. I have over 100,000 unopened emails. When I try to unsubscribe, your site will not allow that response. Please stop. PLEASE STOP.

I want all mailings to cease. I have over 100,000 unopened emails. When I try to...

SibylMasquelier

•7 years ago

1 Reply

Is this allergy or disease??

I always get this on my palm with excessive sweating and itching and when I get this I feel like my palm is bieng pricked...What does this mean??

I always get this on my palm with excessive sweating and itching and when I get ...

Raebaek

•7 years ago

8 Replies

Severe Joint Pain

Does anyone have excruciating joint pain? My GI says some joint pain comes with the territory with PBC and my RA doctor says my joints should not be hurting as...

Does anyone have excruciating joint pain? My GI says some joint pain comes with ...

GhostHunter

•7 years ago

35 Replies

At 6 month mark on urso and somewhat disappointing lab work

Hi! Just an update on me - I've been on urso since 3/30 so almost the 6 month mark. I've been showing steady improvement ( getting labs checked every 2...

Hi! Just an update on me - I've been on urso since 3/30 so almost the 6 month m...

Ottley3

•7 years ago

6 Replies

Feeling confused, frustrated and worried.

An update, I seem to have been writing no positive posts of late. My latest 6 weeks check up at Addenbrookes, again I did not see George Mell, he is only...

An update, I seem to have been writing no positive posts of late. My latest 6 we...

Jo_Br

•7 years ago

15 Replies

Childhood Experiences and DNA

An earlier post asked about stress and trauma and the link to autoimmune disease. I thought this article on how childhood experiences can affect inflammation...

An earlier post asked about stress and trauma and the link to autoimmune disease...

Chrisprio

•7 years ago

7 Replies

Feeling drunk 24/7

Two weeks ago my blood pressure dropped. I thought I just hadn't been drinking enough water since it's hot. The next day I woke up and it dropped again to...

Two weeks ago my blood pressure dropped. I thought I just hadn't been drinking e...

Mittenskittens52

•7 years ago

8 Replies

Can't get my appetite back

Hurricane Irma wasn't as bad as Andrew. However we were without power for several days. Our generator broke. I could only take my meds with peanutbutter...

Hurricane Irma wasn't as bad as Andrew. However we were without power for sever...

Hidden

•7 years ago

10 Replies

Just checking...

There have been a number of questions raised here that might be answered with a quick check of our compendium: Living with PBC. I was curious as to who is...

There have been a number of questions raised here that might be answered with a ...

PBCRobert

Partner•7 years ago

14 Replies

Fibroscan

Had fibroscan this morning. I was under impression I would know results immediately. Technician said she gets results immediately but my dr has to interpret &...

Had fibroscan this morning. I was under impression I would know results immediat...

gwillistexas

•7 years ago

23 Replies

This was on a U. S. A. PBC Forum

Dear PBCers, Thank you, Carol and Cathy, for jumping on the phone at such short notice. Enclosed below is the statement discussed on the call, which you are...

Dear PBCers, Thank you, Carol and Cathy, for jumping on the phone at such shor...

Ktltel

•7 years ago

1 Reply

Advice regarding medication

Hi after some help, I was diagnosed May time by letter saying I am early stages and that I would require regular check ups but I would not require medication...

Hi after some help, I was diagnosed May time by letter saying I am early stages ...

Mnoye

•7 years ago

4 Replies

Blood results terrifying

Hi. Just got my blood test results back. So I have high PLT, Eosinophil, Alkaline Phosphatase, Alanine Transaminase, and Igm. I don't understand any of this....

Hi. Just got my blood test results back. So I have high PLT, Eosinophil, Alkalin...

SharonM69

•7 years ago

4 Replies

Bio bank Royal Free

Hi everyone, After months of terrible symptoms inc chronic fatigue, pruritus, sicca -severe dry Eye disease etc, I tested significantly positive for AMA...

Hi everyone, After months of terrible symptoms inc chronic fatigue, pruritus, s...

Hastingsgal

•7 years ago

7 Replies

Doctor Baffled

Hello everyone. A lot have been going on last few weeks so I haven't been on site for a while. So here is a summery; I had a MRCP and bloodwork done. I saw my...

Hello everyone. A lot have been going on last few weeks so I haven't been on sit...

Y-now

•7 years ago

3 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for September 2017

Keeping warm

My Mom diagnosed with PBC just couple of days back.

Pbc trial😄

Biopsy says PBC/AIH overlap

Fibroscan scores

Post earthquake

Fibroscan

Ductopenic Variant anybody?

Just had fibroscan

Is "Ultrasound with shear wave elastography" test same as "Fibroscan"?

Its kind of being a little bit pregnant....

Ultrasound Vs Fibroscan

Biopsy results

Pins & needles in hands & feet, PBC or peripheral neuropathy?

I'm new here

Hotel California

Is this allergy or disease??

Severe Joint Pain

At 6 month mark on urso and somewhat disappointing lab work

Feeling confused, frustrated and worried.

Childhood Experiences and DNA

Feeling drunk 24/7

Can't get my appetite back

Just checking...

Fibroscan

This was on a U. S. A. PBC Forum

Advice regarding medication

Blood results terrifying

Bio bank Royal Free

Doctor Baffled

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