Just had fibroscan

[SharonM69]

It was so quick even got on the same bus as I came in on. All he said was that I was at 7.0. Does anyone know what this means?

[Jo_Br]

That is good Shaz you are in the normal range of I think the bottom is 4 and top is 7. I was 6.4. xx

Phew for you. xx

[SharonM69 in reply to Jo_Br]

Ooh thanks, that's a relief x

[kimphoebe]

That good news my last one was 16.3 😬

[SharonM69 in reply to kimphoebe]

Thank you x do the drugs stop it getting worse?

[vicary in reply to kimphoebe]

Is that not critical ?

[SharonM69 in reply to vicary]

???

[vicary in reply to SharonM69]

Sorry not very good at this that reply was ment for the lady with results of 16.3 , yr results are good 👌

[kimphoebe in reply to vicary]

Sorry not sure what you mean

[SharonM69 in reply to vicary]

Oh thank god. You got me panicking then

[vicary in reply to SharonM69]

Sorry for that . So pleased yr results were good 😀

[SharonM69 in reply to vicary]

Thank you x

[Hidden in reply to vicary]

No vicary, 16.3 is not "critical", it's not great, but not critical. I'm Stage 4 and my fibroscan result was 30 and I'm not considered "critical" yet.

Here is a link to the fibroscan chart:

4.bp.blogspot.com/-s9nZHQtO...

[vicary in reply to Hidden]

I saw the chart yesterday but didn't really take it in so thankyou , do you have the itching ? If yes how do you cope ? Nothing eases mine and my skin suffers badly no matter what I use ! And with the fatigue it gets me down I'm lucky to get 3 - 4 hrs sleep a night so I'm exhausted all the time , I've gone down to part time which helps a little , any tips would be appreciated .

[Hidden in reply to vicary]

I wasn't sure who may have seen the 'fibroscan chart' so I thought it best to put the link in.

As for the 'itching', I have been one of the lucky ones where that particular symptom is concerned - I only ever had the odd bouts of it throughout the first 20 or so years. This changed during the last 7 or 8 years. Now that I have advanced cirrhosis I seem to be experiencing the itch more often, and sometimes it is quite intense. I haven't really developed any strategies to alleviate the itch.

Fatigue has been my worst symptom - it's what took me to my GP in the first place - I learnt over the years to pace myself, i.e. no point pushing yourself, it just makes things worse, rest when you need to. I stopped work about 7 years ago due to the fatigue, I just couldn't do it any longer - I didn't know at the time that I had moved into cirrhosis stage and had begun to experience some of the 'symptoms' associated with that stage.

One thing to remember, we are all different so will experience PBC differently - my experience will not necessarily be the same as your's. For example, my cousin and I were both diagnosed with PBC the same year (and our biopsies indicated that we were both Stage 2 at the time), other than extreme fatigue I had relatively few symptoms, whereas my cousin was plagued with many symptoms, she received a transplant 3 years ago.

Hope this helps - take care.

Di

[billhunter in reply to Hidden]

The chart is useful, but where does PBC fit in?!

[Hidden in reply to billhunter]

Billhunter, PBC fits into the 'Chronic Cholestatic diseases' section of the chart.

[billhunter in reply to Hidden]

Many thanks indeed. William

[Ottley3]

Congratulations! That's great news. Hope for your continued improvement

[SharonM69 in reply to Ottley3]

Thank you x

[kimphoebe]

Yer they do slow it down. I have the gp210 antybody which is more aggressive form of Pbc so that's why my fibroscan is so high. So you will do well on meds.

[SharonM69 in reply to kimphoebe]

Oh sorry to hear that. Thank you for reply x

[gwillistexas]

From what I've researched that's pretty good😊

[gwillistexas]

My chart shows mine, F-2 fibrosis to be 7-9

[Ballymahon2 in reply to gwillistexas]

Mine was 7.5 is that f2

[Hidden]

i had one last week was told 7and below normal mine was 6.7 nice to hear it was good result x

[SharonM69 in reply to Hidden]

Wow brilliant thank you x