Well, it's been almost 1 year since I was diagnosed with PBC. I couldn't tolerate URSO at first, so I actually didn't get started on it until February of this year. I've had labs done pretty regularly (approx every 3 weeks) at first because they were watching my LFT's, but then my 2nd AI reared its ugly head (RA) and I was put on Sulfasalazine for that. So, they monitored my LFT's while I got started on this other drug. I guess no one seems concerned about anything which is good. My dry eyes, muscle aches, and low grade fever persist... I notice them more at night.
My Alk-phos and AMA M2 are the "only" LFT's elevated all this past year. My Alk-phos fluctuates between 142 and 175. I'm wondering.... Should URSO have brought that Alk-phos number lower by now?? I've blown my diet ALOT in the last few months. Could this have an effect on my Alk-phos not going any lower? My hepatologist doesn't seem concerned and I NEVER speak to him. Our relationship is through his nurse. Lol
Anyway, I guess I'm not sure what I should be looking for while on URSO. Should I be expecting my Alk-phos to get into that ever elusive normal range at some point?? What's been your experience? Oh... I almost forgot,... I just had an ultrasound... I'm supposed to get one every 6 months. This was my first.... It came back unremarkable but, I was told ultrasounds aren't as good as fibroscans at detecting fibrosis. Problem is, my GI doesn't have one... only ultrasound equipment. Might they miss seeing something???
I love the way that one little sunflower has its head turned upward. Sort of saying... "keep your chin up"
DX PBC 10/16
DX RA 4/17
DX DeQuervain's tendonitis 7/17