I had never in my life heard of exercise intolerance. When I walked one time around my block, the next day I was so fatigued that I couldn't get out of bed. After this happened three different times I contacted my doctor and was told that it was exercise intolerance and to just listen to my body. The problem is that I'm fine during and after the walk, but the next day am out of commission. My numbers have improved with the Urso, so that part is good. I'm just afraid to exercise at all now because I work full time and am afraid I won't be able to make it in to work the next day.
Having PBC itself doesn't worry me. What worries me is the possibility that I won't be able to continue to do my job well because of fatigue. I like my job and need to work. My hubby is disabled and since my diagnosis he has been amazing. I don't vent to him about my work worries and appreciate being able to vent here, as i dont want to worry him if I can help it.
I'm very compliant with my doctor's recommendations, do everything I'm supposed to do and haven't had any alcohol since being diagnosed (my choice).
Any thoughts or suggestions on feeling better? As I mentioned I'm afraid to attempt to exercise at all any more.