Recently my mother underwent Firboscan test... - PBC Foundation

PBC Foundation

9,569 members8,580 posts

Recently my mother underwent Firboscan test, she has median - 41.2 , IQR - 10.1, IQR % age - 24%.Can u tell me the level of liver damage.

zaraki profile image
2 Replies

She also had an HVPG test with HVPG-13.5 mm of HG. My doctor is keeping us in darkness about the the whole damage %age and treatment. This has led to confusion about the whole problem. Can u please guide us in the right direction and please donot lie about the bad results. Thanx in advance

Written by
zaraki profile image
zaraki
To view profiles and participate in discussions please or .
Read more about...
2 Replies

Sorry zaraki.

This is quite beyond me. I am in the UK and all I seemed to get back in 2010 the year I was diagnosed with PBC was this test was 'abnormal', this one was 'low', 'positive', etc and no figures. I did ask for the print-out of the bloods I was having (the liver function test, full blood count) due to wanting to know what was what and I have been receiving ever since.

I find the only way to get answers you require is to ask outright what such-and-such means when it is mentioned. Some doctors can skirt round the issue and say things that bit gentler so as not to alarm a patient but if a patient asks exactly what the doctor is referring then usually you would find out.

I am one who likes to know simply because I have experienced in the past (not with myself) that sometimes a doctor can read something wrong or even get it wrong.

I've not had a fibroscan, they seem to be quite rare at present in the UK under the NHS but I expect at some point in future they will appear in most hospitals.

zaraki profile image
zaraki in reply to

thanks for sharing your experience....I have got it all sorted out, it seems that it is the starting phase of cirhossis.

Not what you're looking for?

You may also like...

PBC Foundation Coming to USA

About to board a plane for Japan to present at APASL, so only a quick message. In partnership...
PBCRobert profile image
Partner

Is it ok to take iron supplements with PBC?

My gastroenterologist diagnosed PBC in 2016 and has not given me any other information about how to...
KristinCC profile image

does anyone shake from time to time?

about three or four times recently I have developed a shakey sensation effecting my whole body and...

Help My mom was diagnosed with PBC and we need answers if anyone can help.

Hi everyone my mom is 72 years old and was diagnosed with PBC in January of 2013. She has little to...
andrea042473 profile image

Fibroscan and ultrasound

Hi friends Haven’t posted for a long time and thought I’d feed back on my recent experiences of...
Skypony profile image

Moderation team

See all
PBCCheryll profile image
PBCCheryllAdministrator
janethomas profile image
janethomasModerator
Cupcake1971_ profile image
Cupcake1971_Moderator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.