Does anyone suffer with migraine attacks in relation to their PBC?

[nursenicky13]

[littlemo]

Only time I got headaches was when I was diagnosed and I was very stressed out and only other time was when I was pregnant and my liver was in difficulty. As you probably know a lot of heaches can be caused through dehydration, too much caffeine or stress. If I were you and you cant pinpoint what may be causing them would seek medical advice.

[Disy]

Hi there

I agree with littlemo but don't forget due to PBC we are carrying a lot more toxins around and they can cause headaches. I have had quite a few and they are not nice. I am trying to have the extra water to try and flush out as much as I can. But do see your Doc if they don't go away.

cheers for now.

[nursenicky13]

Thanks guys for your advice. I have been asked to keep a diary by the GP/occupational health. I have been given migraine tablets which seem to be working but just wondered what everyone else's experience was.

[Val02]

Hi - I have had a lot of migraine headaches since having PBC - I have had quite a few investigations but they haven't turned anything up. When I get them it is every day for about 10 days then they go away for a while before coming back. I think they call that "cluster" headaches - very unpleasant..

[Wendom in reply to Val02]

Hi there i had an awful headache that lasted about 10 months without relief I was given all sorts of brain scans but nothing was ever found that was a few years ago but at the end of 2010 it came back lasted about three months shortly after I was told I was Ama positive I've since found out have been AMA positive since at least 2006 also I have sicca or sjogrens and antibodies against my thyroid so I believe there is a link as to why I suffered these awful headaches and why they lasted so long they where so debilitating because of the length of time they lasted and nothing I took would get rid of them they just went by themselves hope this helps take care x

[JennerLayne]

Oddly, my Raynauld's seemed to come on in conjunction with a migraine variant which acted like a stroke. I lost part of my memory (couldn't remember by birthday, but knew my name, knew I worked, but had no clue where, etc.), my right side went numb, and I temporarily lost some eye sight. I also lost speech and had a short-term list (around age 40). The next day I experienced Raynaulds for the first time, which may not be directly linked to PBC but shows up in the Autoimmune family.

I did see my neurologist earlier this week for a 6 month check up and informed him of my PBC and AIH. He didn't seem to think there was a link, but did go and check his medical books. He also wanted to see if migraines improve with a GF diet. He came back with no substancial info. I'd love to know if there are connections.

[nursenicky13]

I also suffer Raynauds Phenomenon & believe this was one of my earliest symptoms a couple of years following the birth of my first child. I have experienced Raynauds for at least 8 years & have suffered with problems with my skin for about 6/7years but was only diagnosed earlier this year. I am just getting migraine attacks around the time when I menstruate as I have had to keep a diary. I was told by my gastroenterologist/hepatologist that there could be some neurological changes possibly.