Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,391 members • 8,002 posts

All posts for July 2012

Just been diagnosed......what happens next ? :(

Hello everyone I was diagnosed yesterday with PCB. I am 41 years old.My doc has prescribed meds to take twice a day. I have done a bit of reading on the...

Hello everyone I was diagnosed yesterday with PCB. I am 41 years old.My doc has...

Cainster

•12 years ago

19 Replies

Itch

Thank you so much for all your answers to my question regarding the dreaded itch. I went to drs yesterday and she prescribed questran. I took one sachet...

Thank you so much for all your answers to my question regarding the dreaded itch...

Shirleygreen

•12 years ago

10 Replies

Anyone with PBC plus Hashimotos? How was your Hashimotos diagnosed?

Hi everyone. I was wondering how prevelant PBC together with Hashimotos is. If you have Hashimotos but your TFT levels were normal, how was it diagnosed?...

Hi everyone. I was wondering how prevelant PBC together with Hashimotos is. If y...

Kaywal

•12 years ago

2 Replies

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Hi can anyone help. Itching does it come in the form of an allergy type itch and also what do you use for the itch?

Shirleygreen

•12 years ago

25 Replies

Does the temperature affect PBC

I live in the United States ....Michigan to be exact,and our summer has been extremely hot. I am noticing that my mornings somedays start out pretty good but...

I live in the United States ....Michigan to be exact,and our summer has been ext...

PBC2012

•12 years ago

9 Replies

Finally someone understands!

Yesterday I started seeing a therapist to help me deal with the depression, isolation and feelings of total loss of control. She understood immediately all...

Yesterday I started seeing a therapist to help me deal with the depression, isol...

PBC2012

•12 years ago

9 Replies

Could someone explain what some of the terms mean regarding the blood tests etc?

I am not entirely sure the terms I have been reading regarding blood results. I have heard about the AMA test but do not exactly know what it actually means. I...

I am not entirely sure the terms I have been reading regarding blood results. I ...

mumofthree

•12 years ago

14 Replies

How many if you have PBC and Fibro

Just wondering how many people have both ? As I have said b4 Dr said I havent got it and then says I have got fibro Who do you need to see to have fibro...

Just wondering how many people have both ? As I have said b4 Dr said I havent g...

cowren

•12 years ago

12 Replies

Transplant Week

I would just like to remind everyone that this week is Transplant week, having had a liver transplant and knowing how long people are awaiting transplant - do...

I would just like to remind everyone that this week is Transplant week, having h...

LindaRose

•12 years ago

15 Replies

advanced stages with cirrhosis any1?

6 months ago I was told I had reached advanced stages with this disease and had cirrhosis. my urso dose was doubled and i was told i would need repeat scans...

6 months ago I was told I had reached advanced stages with this disease and had ...

itchyandscratchy

•12 years ago

8 Replies

Does anyone know if URSO would br prescribed to someone with advanced stage PBC at diagnosis?

I would be interested to know if URSO would be prescribed to someone possibly already at advanced stage when diagnosed with PBC. I am in a bit of a quandry...

I would be interested to know if URSO would be prescribed to someone possibly al...

mumofthree

•12 years ago

15 Replies

The Hepatitis vaccination for travel

Anyone out there since being diagnosed with PBC had to have an altered measure of the Hep vaccination for travel? I only had the Hep vaccinations for working...

Anyone out there since being diagnosed with PBC had to have an altered measure o...

Hidden

•12 years ago

Be the first to reply

Does anyone have problems with their finger nails or toe nails with PBC, my nails are yellowish in colour?

mandyc

•12 years ago

22 Replies

Interested to know what alternative therapies people have tried, and how helpful they have found them.

Feeling really fed up with medical profession and decided that if they are not going to help me Id like to try my own thing; after all Im the one who knows how...

Feeling really fed up with medical profession and decided that if they are not g...

Val02

•12 years ago

15 Replies

Do I even have PBC?

Hi, this is my first post and it's not so much a question but a rant. I had my gall bladder taken out 2 years ago after repeated gall stone attacks. Afterwards...

Hi, this is my first post and it's not so much a question but a rant. I had my g...

Hidden

•12 years ago

7 Replies

When u first took symtpms of pbc/ when you were diagnosesd with pbc did you have any viruses or infections/ been through any recent trauma?

When I first suffered with symptoms that lead to my diagnosis of pbc I had two really bad doses of tonsillitis due I feel ,to fact I'd was going through a very...

When I first suffered with symptoms that lead to my diagnosis of pbc I had two r...

littlemo

•12 years ago

42 Replies

To all those who live in sunny climates all the time do you suffer with the itch caused by PBC?

I was diagnosed with pbc ten years ago, a year after first had the symptoms and have suffered with the itch all this time to a greater or lesser degree day and...

I was diagnosed with pbc ten years ago, a year after first had the symptoms and ...

littlemo

•12 years ago

15 Replies

Has anyone had a MRE (not an MRI) at the Mayo Clinic? If so, I'd love to hear about it.

I'm trying to get one scheduled, but would have to travel and it could get pretty expensive, so I want to make sure it's worth it first. :)

I'm trying to get one scheduled, but would have to travel and it could get prett...

KarenRL

•12 years ago

19 Replies

Ladies have any of you been pregnant following diagnosis of pbc and if so did your consultant keep you on urso during your pregnancy?

I was pregnant 6yrs ago and was off the urso for first 5mths, the first 3mths I felt great but into the 4th month I became quite unwell. I was put back on urso...

I was pregnant 6yrs ago and was off the urso for first 5mths, the first 3mths I ...

littlemo

•12 years ago

5 Replies

Liver Pain - Due to medications or is condition worsening?

I was diagnosed with AIH-PBC Overlap Syndrome, Stage 3, a couple of months ago. Prior to my diagnosis, I had symptoms, but I never experienced liver pain....

I was diagnosed with AIH-PBC Overlap Syndrome, Stage 3, a couple of months ago. ...

KarenRL

•12 years ago

13 Replies

Good news

thought I would share my good news with you all I have been awarded DLA high level for mobility and low level care,still have the medical to have for ESA so I...

thought I would share my good news with you all I have been awarded DLA high lev...

Neata

•12 years ago

10 Replies

Just having a moan

Just been to see the Rheumatologist again as my Gastro Consultant referred me back there. AAAAGH. I was diagnosed with PBC in 2010 and like most people on...

Just been to see the Rheumatologist again as my Gastro Consultant referred me ba...

PiPi

•12 years ago

11 Replies

LLoyd George + problem, NEC depression

Has anyone anyone else had these diagnoses on their records. Lloyd George + problem is when your GP records overflow the brown folder. Hypochondriac comes...

Has anyone anyone else had these diagnoses on their records. Lloyd George + p...

Mary48

•12 years ago

10 Replies

hi, i have recently been diagnosed with pbc, and i was wondering if anyone else had trouble getting rid of coughs/colds ?

i have noticed for a few years now i have trouble shaking coughs/colds they seem to linger for ages. i was wondering if this was a symptom of pbc and also...

i have noticed for a few years now i have trouble shaking coughs/colds they seem...

marky123

•12 years ago

8 Replies

Does anyone know or have a lovely tan all year, yet not have abnormal bilirubin levels?

I have a lovely "tan" all year round yet I'm Irish, usually very fair skinned and my bilirubin is normal. Can anyone out there enlighten me as to how this is...

I have a lovely "tan" all year round yet I'm Irish, usually very fair skinned an...

littlemo

•12 years ago

18 Replies

reflux Gerd

hi hope some one can help, i have acid reflux for 6 years now was diag 6 years ago with gerd and hiatus hernia, small sliding, i have been taken PPI zoton 15...

hi hope some one can help, i have acid reflux for 6 years now was diag 6 years ...

kevmos27

•12 years ago

2 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for July 2012

Just been diagnosed......what happens next ? :(

Itch

Anyone with PBC plus Hashimotos? How was your Hashimotos diagnosed?

Hi can anyone help. Itching does it come in the form of an allergy type itch and also what do you use for the itch?

Does the temperature affect PBC

Finally someone understands!

Could someone explain what some of the terms mean regarding the blood tests etc?

How many if you have PBC and Fibro

Transplant Week

advanced stages with cirrhosis any1?

Does anyone know if URSO would br prescribed to someone with advanced stage PBC at diagnosis?

The Hepatitis vaccination for travel

Does anyone have problems with their finger nails or toe nails with PBC, my nails are yellowish in colour?

Interested to know what alternative therapies people have tried, and how helpful they have found them.

Do I even have PBC?

When u first took symtpms of pbc/ when you were diagnosesd with pbc did you have any viruses or infections/ been through any recent trauma?

To all those who live in sunny climates all the time do you suffer with the itch caused by PBC?

Has anyone had a MRE (not an MRI) at the Mayo Clinic? If so, I'd love to hear about it.

Ladies have any of you been pregnant following diagnosis of pbc and if so did your consultant keep you on urso during your pregnancy?

Liver Pain - Due to medications or is condition worsening?

Good news

Just having a moan

LLoyd George + problem, NEC depression

hi, i have recently been diagnosed with pbc, and i was wondering if anyone else had trouble getting rid of coughs/colds ?

Does anyone know or have a lovely tan all year, yet not have abnormal bilirubin levels?

reflux Gerd

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