6 months ago I was told I had reached advanced stages with this disease and had cirrhosis. my urso dose was doubled and i was told i would need repeat scans every 6 months to monitor progression and look out for any sign of liver cancer. yikes!! and that transplant would now be likely.
well i'm due for my scan next month, my ALT has improved vastly from a steady reading of 200+ to a meager 95. however i have started to lose weight, (9lb in a fortnight), I feel very nauseas, increasingly fatigued etc. I think things may be deteriorating.
i would really like to hear from any1 who is in a similar stage of the disease or further down the line. i want to know about the assessment process, what happens, what tests are performed. i need to know the how and whens so I can prepare for my next appointment and have an idea of things to ask. I need the replies to be direct and honest, i don't feel fear (yet) just anxious about the unknown and so i need to hear personal experiences and thoughts, so go...sock it to me, what is round the corner?