Just been to see the Rheumatologist again as my Gastro Consultant referred me back there. AAAAGH. I was diagnosed with PBC in 2010 and like most people on here seem to have to fight for every piece of information, I even had a second opinion. The Rheumatologist has referred me to Physio (yet again, didn't work last time as I could not do the things he wanted me to do!!!) He is also referring me to Occupational Therapy but has not really explained why. I feel let doen yet again. Like everyone else my body feels it does not belong to me anymore, some days I can't physically get out of bed and some days I can't walk. My Gastro has not given me much support and has not mentioned my blood tests even though I know they are slightly elevated, Billirubin and Alkaline Phospahte. I am on Vit D / Calcium because of Vit D deficiency and now have been diagnosed with thinning bones, I am also have high Cholesterol all down to the PBC. I have not been put on any other meds i.e. URSO, seem to be the only one on this site who hasn't. I found out today that my Gastro has a sister with PBC, so you would think he would understand wouldn,t you? Sorry to ramble on, just very frustrated and tired.
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