I am not entirely sure the terms I have been reading regarding blood results. I have heard about the AMA test but do not exactly know what it actually means. I have seen references to LFT's, ALT and bilirubin but do not have a clue what they are and what I should be taking notice of. I feel really ignorant!
All I do know is that the levels in my blood the last time I was seen were almost normal. But levels of what could they mean? What is good and what is bad? Also I have no idea what 'stage' I am at. How can you tell? Is it when you have certain or more symptoms? I have joint and muscle pain, fatigue, indigestion and for the last month or so I have noticed I wake up several times throughout the night with a very dry mouth, my tongue sticks to the roof of my mouth and gets really sour.
I have seen the consultant on 3 ocassions. I was diagnosed with PBC in Jan 2011. But due to nerves etc and being bombarded with medical terms i do not understand, I have great difficulty in taking in what they say. My sister has accompanied me on the last 2 ocassions so she can listen to what is being said. I get myself in a proper state, I can't say anything and end up not really hearing what I am being told or asked. I find it all a bit scary and it gets a bit too much for me...Silly I know, but I find it all really strange and can't get my head around having something seriously wrong with me.
I hope I am not the only stupid one!!