Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,449 members • 8,213 posts

All posts for June 2012

I am in early Duypuytren contracture stages and am looking for a clinical trial. I am in Chicago.

zxdew

•12 years ago

3 Replies

cold

Hi all, Does anyone else really feel the cold? I have noticed that i find it very difficult to get warm and my hands are like ice, if i had it my way we would...

Hi all, Does anyone else really feel the cold? I have noticed that i find it ve...

Lisa30

•12 years ago

9 Replies

my partners ESA back pay how long?

can anybody help in advising how long ESA backpay after a successful tribunal takes to sort out?after winning the tribunal 7 weeks ago which after 8 months of...

can anybody help in advising how long ESA backpay after a successful tribunal ta...

ricky87

•12 years ago

4 Replies

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Steroids for PBC/Hepatitis overlap syndrome

Just started 8 weeks of steroids for PBC/Hepatitis overlap syndrome, does anyone else have this combination and did the steroids help? thanks xx

Just started 8 weeks of steroids for PBC/Hepatitis overlap syndrome, does anyone...

Lindilou

•12 years ago

17 Replies

An attempt at a good weekend with fiance

Last Wednesday my rheumatologist gave me an injection for pain, by friday I was feeling better than I had in months so my fiance and I decided to take alittle...

Last Wednesday my rheumatologist gave me an injection for pain, by friday I was ...

PBC2012

•12 years ago

8 Replies

bad few days

my husband and i had our first weekend away together in 2.5 years since our daughter was born, we went to a friends wedding in Wales. as you can imagine we...

my husband and i had our first weekend away together in 2.5 years since our daug...

Lisa30

•12 years ago

8 Replies

Have any of you ever taken slow release Niacin over a period of time?

It was symptoms that I had from taking slow release Niacin that led to my PBC dx. I was taking Niacin because I thought it would lower my elevated cholestoral...

It was symptoms that I had from taking slow release Niacin that led to my PBC dx...

Hidden

•12 years ago

Be the first to reply

Does anyone have trouble with their hands cramping when peeling vegetables or holding something?

Alley27

•12 years ago

22 Replies

Anyone have dupuytrens contracture of the hand? or relatives affected?

Dupuytren's contracture, also called Dupuytren's disease, is a progressive thickening and tightening of the connective tissue in the palm. As it progresses,...

Dupuytren's contracture, also called Dupuytren's disease, is a progressive thick...

dizee

•12 years ago

8 Replies

Itching and Ursodiol

Hi! I'm new to this group & was dx'd with PBC in April 12. I have been dealing with joint pain...fingers, knees etc. I don't have RA my Dr thinks its just...

Hi! I'm new to this group & was dx'd with PBC in April 12. I have been dealing...

general1

•12 years ago

8 Replies

Anyone at some point in their life had their appendix removed?

I have read on a health site (Boots) where people can contribute with their experiences that one contributor has mentioned she had her appendix out prior to...

I have read on a health site (Boots) where people can contribute with their expe...

Hidden

•12 years ago

28 Replies

Has anyone been to a tribunal with regards claiming ESA due to PBC and RA?

macR

•12 years ago

15 Replies

I am newly diagnosed with PBC and am having alot of bloating and abdominal pain. I cannot see my liver specialist until August.

Any advice or help with understanding this disease, from a stand point of someone actually experiencing it, would be much appreciated. I also have fibromyalgia...

Any advice or help with understanding this disease, from a stand point of someon...

PBC2012

•12 years ago

23 Replies

Yes Help with Itching

I get the itching especially on my back, head and arms. Is this the same for everyone else. I could do with some advise about this too please.

I get the itching especially on my back, head and arms. Is this the same for eve...

wongie

•12 years ago

3 Replies

Gastritis/Acid Reflux

Just a question to ask how many of us were diagnosed with digetive disorders previously to our PBC/AIH. It would be interesting to find out just how many....

Just a question to ask how many of us were diagnosed with digetive disorders pre...

Alley27

•12 years ago

32 Replies

Increased sensitivity to sunlight?

Firstly I'd like to say "hi" - I am new to the site today. I was wondering if anyone else seems to be having any issues with sensitivity to sunlight? I was...

Firstly I'd like to say "hi" - I am new to the site today. I was wondering if...

RockPrincess

•12 years ago

7 Replies

PCB....an I thought yer life began at 40....lol

Hi just recently been diagnosed with PCB.. In 2007 I was diagnosed with autoimmune haemolytic anaemia..never knew wot hit me. I attend my Blood consultant...

Hi just recently been diagnosed with PCB.. In 2007 I was diagnosed with autoimmu...

juliewooly

•12 years ago

22 Replies

What are your opinions on a vegetarian diet for PBC and AIH?

I struggle with appetite. My digestion is very sluggish and if I eat meat it just stays there and gives meterrible indigestion. I have eaten a veggie diet for...

I struggle with appetite. My digestion is very sluggish and if I eat meat it jus...

Alley27

•12 years ago

15 Replies

Does any one have trouble with weight and appetite.

Don't know about you guys but I have trouble with my weight. I have no appetite and some days I seem to have lost weight but on others I have no appetite but...

Don't know about you guys but I have trouble with my weight. I have no appetite ...

Alley27

•12 years ago

7 Replies

Why can't the liver rejuvenate itself with PBC or AIH?

Jtxx

•12 years ago

15 Replies

Balance problems !!

Does anyone have problems with their balance ?? I have PBC fibromyalgia high blood pressure and cervical spondolitis fusion of the lower spine. But I have...

Does anyone have problems with their balance ?? I have PBC fibromyalgia high bl...

cowren

•12 years ago

14 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for June 2012

I am in early Duypuytren contracture stages and am looking for a clinical trial. I am in Chicago.

cold

my partners ESA back pay how long?

Steroids for PBC/Hepatitis overlap syndrome

An attempt at a good weekend with fiance

bad few days

Have any of you ever taken slow release Niacin over a period of time?

Does anyone have trouble with their hands cramping when peeling vegetables or holding something?

Anyone have dupuytrens contracture of the hand? or relatives affected?

Itching and Ursodiol

Anyone at some point in their life had their appendix removed?

Has anyone been to a tribunal with regards claiming ESA due to PBC and RA?

I am newly diagnosed with PBC and am having alot of bloating and abdominal pain. I cannot see my liver specialist until August.

Yes Help with Itching

Gastritis/Acid Reflux

Increased sensitivity to sunlight?

PCB....an I thought yer life began at 40....lol

What are your opinions on a vegetarian diet for PBC and AIH?

Does any one have trouble with weight and appetite.

Why can't the liver rejuvenate itself with PBC or AIH?

Balance problems !!

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